PDA

View Full Version : Thoughts for my daughter, Lili


Ari Chi3fs
08-31-2007, 04:07 PM
I wouldn't normally mention this type of thing, but my daughter has been having extremely high temperatures as high 104.6 the past couple of days. And is about to be admitted into Children's Mercy Hospital right now.

This same thing happened about 2 months ago, and they thought they got it under control, but it is back.

More than likely they said they will have to do a spinal tap on her 21 month old spine, and give her an IV in her tiny arm.

Her white blood cells are very low, and her platelets are low.

We don't know what is going on... but please just send a little happy prayer of healing for little Liliana.

Thanks. :deevee:

tw
http://www.cultivategreatness.com/assets/lili2.jpg

BIG_DADDY
08-31-2007, 04:08 PM
You got it buddy, god bless.

FAX
08-31-2007, 04:09 PM
Damn. I'm very, very sorry to hear this, Mr. Ari Chi3fs.

We are down with thoughts and prayers for you and your family.

FAX

Donger
08-31-2007, 04:09 PM
That's terrible. Best of luck, and she will be in my thoughts.

seclark
08-31-2007, 04:09 PM
thoughts and prayers for the baby girl and her family.
sec

44Page44
08-31-2007, 04:10 PM
Thoughts for her and your family.

boogblaster
08-31-2007, 04:10 PM
Damn man bad news, stay on top of it, get other opinions if neccessary ....

kepp
08-31-2007, 04:11 PM
I'm sorry your little girl is going to be admitted. Thought and prayers headed her way...

Ari Chi3fs
08-31-2007, 04:11 PM
Thanks for the happy thoughts and expectations of healing. That is what is needed.

Thanks all. We appreciate it.

noa
08-31-2007, 04:12 PM
I'm very sorry to hear this. My thoughts and prayers are with you.

Stewie
08-31-2007, 04:12 PM
Prayers your way.

I have two nieces (nurses) who work at Children's Mercy and your daughter will get the best treatment for sure.

Dunit35
08-31-2007, 04:12 PM
My prayers go out to you bud.

Woodrow Call
08-31-2007, 04:13 PM
She is in my thoughts and prayers

KcMizzou
08-31-2007, 04:25 PM
Best wishes to your little girl.

Hang in there, dad.

Nzoner
08-31-2007, 04:29 PM
Sorry to hear man,best wishes

Frazod
08-31-2007, 04:37 PM
Hope everything turns out OK.

KCFalcon59
08-31-2007, 04:40 PM
Prayers on the way. Hope everything is alright.

NUMBER7
08-31-2007, 04:41 PM
Prayers from my wife and myself.

L.A. Chieffan
08-31-2007, 04:57 PM
I'm really sorry to hear that Ari, as a Father of a 9 year old girl I can understand what you're going thru. She had scarlett fever when she was about 4 years old and that was a scary time for a while.
Hopefully everything works out well. I'm pulling for her.

Manila-Chief
08-31-2007, 05:28 PM
I did and for you and your wife as well... for healing and wisdom for the Drs. and nurses.

vincent
08-31-2007, 05:55 PM
I'm truly sorry to hear that AC. I also have a daughter named Lili, and she was born with a "dimple" on her lower back, right above her bottom. We were very scared for a while, as there was some speculation as to whether or not the "dimple" was too close to the spinal fluid sac at the base of her spine, but the doctors have given her a clean bill of health.

I hope and pray the doctors give your Lili the same clean bill of health.

good thoughts and prayers are with you

vincent
08-31-2007, 05:57 PM
Just noticed your daughter's full name was Liliana, same as my little girl... same spelling and all.

god bless

Chiefs_Mike_Topeka
08-31-2007, 06:25 PM
God Bless your daughter and your family; I pray everything turns out fine.

cookster50
08-31-2007, 06:38 PM
Sorry to hear, best of luck. Puts the Chiefs season in perspective....

Logical
08-31-2007, 06:55 PM
You have my sincere positive thoughts for Lili, may she get well quickly and permanently.

go bowe
08-31-2007, 07:15 PM
I wouldn't normally mention this type of thing, but my daughter has been having extremely high temperatures as high 104.6 the past couple of days. And is about to be admitted into Children's Mercy Hospital right now.

This same thing happened about 2 months ago, and they thought they got it under control, but it is back.

More than likely they said they will have to do a spinal tap on her 21 month old spine, and give her an IV in her tiny arm.

Her white blood cells are very low, and her platelets are low.

We don't know what is going on... but please just send a little happy prayer of healing for little Liliana.

Thanks. :deevee:

twbest wishes to your daughter...

may she have a speedy recovery...

by the way, my wife's first grandbaby is a girl named liliana...

and here i thought it was a completely new name...

our liliana is pulling for your Liliana too...

tommykat
08-31-2007, 07:53 PM
Prayed for Lili and your family, prayers will continue. Let us know what happens.

dirk digler
08-31-2007, 08:24 PM
Thoughts and prayers to your daughter and your family Ari.

Skip Towne
08-31-2007, 08:27 PM
Our prayers are with you.

Braincase
08-31-2007, 08:27 PM
(Prayers)

Bill Parcells
08-31-2007, 08:54 PM
Sorry to hear that, Trav.

Thoughts and prayers for you, your family, and your daughter.

morphius
08-31-2007, 09:33 PM
You got it man, there isn't much worse then seeing your kids that sick. My son had pneumonia about 5 times and it just makes you feel helpless.

JohninGpt
08-31-2007, 09:39 PM
Sent.

ptlyon
08-31-2007, 10:11 PM
Prayers sent.

Buehler445
08-31-2007, 10:12 PM
Hey man, you've got prayers. Sad sad sad. I truely hope she gets better and leads a healthy happy life.

My dad is a Shriner and they raise a ton of money for kids like your daughter. They don't have to go to a Shriner hospital. I know they offer grants. I'll see if I can get a link for you. Definitely look into it.

I do wish you the best. Head up, stay faithful.

Buehler

Calcountry
08-31-2007, 10:51 PM
My thoughts and prayers to you and your family.

Ari Chi3fs
08-31-2007, 11:00 PM
Yeah, sitting here in the hospital room, she just went to sleep.

Seeing her with the IV in her little arm with the brace on, is just so uncomfortable.

Her temp is down, but they are waiting on cultures to come back, I guess.

Plus there isn't a doctor here right now, so we don't really know anything.

They mentioned that some kids just get really high fevers when fighting viruses. over 104.6 is too damn high. Ugh.

But thanks for all the kind words everyone. We expect everything to work out fine.

At least at the hospital they take her temperature in a more humane way. I think my wife may have given my daughter shock these past couple days with all the temperature checking going on down there.

Speaking of which anyone have any good thermometer recommendations besides rectal ones? heh. Are those electronic ear ones any good?

plbrdude
08-31-2007, 11:00 PM
prayers said. God bless

DaKCMan AP
08-31-2007, 11:15 PM
Hoping she's healthy and home very soon.

TrebMaxx
08-31-2007, 11:18 PM
Prayers from me to your family. Keep strong.

Mr. Flopnuts
08-31-2007, 11:30 PM
I'm sorry man, my families thoughts and prayers are with you and your family.

Frankie
08-31-2007, 11:43 PM
Lili and her parents are in our thoughts. Be strong. Young'ns are a lot stronger than you think. Post a pic when she's healthy again.

TinyEvel
09-01-2007, 12:09 AM
Sorry to hear that, sir.
Our prayers are with you and your family. We had to do it last year, but our daughter was 5.
Educate yourself on the web all you can and rule nothing out.
Ask questions. Be patient. Pray.
Hope it all turns out OK.

big nasty kcnut
09-01-2007, 12:16 AM
lili is in my prayer and hope the little angel comes out ok.

Ebolapox
09-01-2007, 01:06 AM
damn, dude. you have my condolences, and she's in the thoughts/prayers.

Buck
09-01-2007, 01:55 AM
Sorry to hear about this. Prayers to your daughter and your family.

ChiefJustice
09-01-2007, 03:26 AM
My prayers are with your daughter and your family.

Jilly
09-01-2007, 08:05 AM
May God give your daughter strength and healing and surround you with a sense of peace and hope.

ROYC75
09-01-2007, 09:23 AM
Will do man, here's hoping all goes well for her......

Gods hands are working his will man ,

Smoke
09-01-2007, 09:47 AM
Had something like this with my daughter last year. Two E.R. trips and four visits to her Doctor and it all boiled down to having a virus and she caught a flu bug on top of that.

I.V.s in kids suck but not as bad as having to watch them cook at 105 degrees. Good thing is kids are tougher than adults when it comes to that.

Stay strong and I hope she rebounds quickly.

MikeTheWildcat
09-01-2007, 10:28 AM
Prayers for your daughter and your family.

Bowser
09-01-2007, 10:57 AM
Hang in there and stay strong.

wazu
09-01-2007, 11:19 AM
She and your family are in my prayers. Stay strong, Lili!

Lzen
09-01-2007, 11:43 AM
Will do. Prayers for your daughter and your family.

memyselfI
09-01-2007, 12:32 PM
Mega prayers, Ali. I hope she is fine. She's in very good hands as that hospital is one of the best.

ChiTown
09-01-2007, 01:31 PM
Ari

The ear thermometers work great. I checked and we have a ThermoScan by Braun that we've had for years.

I'm sending some positive mojo your way, my friend. Stay strong,

Pat

Dave Lane
09-01-2007, 02:06 PM
Done my friend good luck to you and your daughter!

Dave

Rain Man
09-01-2007, 02:33 PM
Hope she's doing well.

Ari Chi3fs
09-01-2007, 02:42 PM
Thanks again, guys.

We are sitting and waiting at the hospital. We will find out more tomorrow after the blood cultures have been going for 48 hours.

We are hoping it will rule out some of the nasty diagnoses.

ChiefsFan4Life
09-01-2007, 05:37 PM
Good luck Ari ... hope everything turns out ok

Color Red
09-01-2007, 06:32 PM
It is awesome that prayer requests are welcome in this forum and that Planet Members are respectful of that.

I'll be sure and pray for Lili right now.

KcMizzou
09-01-2007, 07:41 PM
It is awesome that prayer requests are welcome in this forum and that Planet Members are respectful of that.

I'll be sure and pray for Lili right now.This is a pretty tight-knit community.

We bitch and fight a lot, but we're really like a big disfunctional family.

RJ
09-01-2007, 07:41 PM
Ari, all my best thoughts and wishes for Lili and you and your family.

RJ
09-01-2007, 07:50 PM
Yeah, sitting here in the hospital room, she just went to sleep.

Seeing her with the IV in her little arm with the brace on, is just so uncomfortable.

Her temp is down, but they are waiting on cultures to come back, I guess.

Plus there isn't a doctor here right now, so we don't really know anything.

They mentioned that some kids just get really high fevers when fighting viruses. over 104.6 is too damn high. Ugh.

But thanks for all the kind words everyone. We expect everything to work out fine.

At least at the hospital they take her temperature in a more humane way. I think my wife may have given my daughter shock these past couple days with all the temperature checking going on down there.

Speaking of which anyone have any good thermometer recommendations besides rectal ones? heh. Are those electronic ear ones any good?



We've used the ear thermometer on our little girl for the past couple years, seems to work fine.

As to the fever part, a kid can take a much higher fever than an adult. I have a paper from the pediatrician that says at 105 we should "call the doctor". Yeah, right. Anything close to that and, like you, I'm on my way to get the kid to the emergency room. But I guess it's more common in small children than we realize.

My heart goes out to you, Ari. This kind of thing is scary and not knowing what's wrong is the worst part. Hang in there, hope Lili is home safe and healthy real soon.

Iowanian
09-01-2007, 09:08 PM
Ding.

Dear God, You've got Mail.

HemiEd
09-01-2007, 09:57 PM
My thoughts and prayers are with you.

Simplex3
09-02-2007, 10:19 AM
Good luck to her, keep us posted.

Simplex3
09-02-2007, 10:21 AM
We've used the ear thermometer on our little girl for the past couple years, seems to work fine.
The ear ones are fantastic. We've used one for years and there's no way I'd go back, it's just so much faster.

the Talking Can
09-02-2007, 11:21 AM
hoping for the best

Ari Chi3fs
09-02-2007, 11:58 AM
The doctors just came in, and told us the results of the labs.

The blood cultures are negative.

Her white blood cells and hemoglobin has risen to near normal levels.

BUT... her neutrophils are very low. Normal is 1500+ hers is 144.

The neutrophil is what fights off bacteria. So any bacteria comes her way, right now, there are no 'soldiers' to really fight them.

She did have a rash today, which signifies a break in the viral infection, and is a good sign.

However, she is staying another day. So, if you have a prayer ... ask for increased neutrophil creation in her body.

Neutrophil: A type of white blood cell, specifically a form of granulocyte, filled with neutrally-staining granules, tiny sacs of enzymes that help the cell to kill and digest microorganisms it has engulfed by phagocytosis. The mature neutrophil has a segmented nucleus (it is called a seg or poly) while the immature neutrophil has band-shape nucleus (it is called a band). The neutrophil has a lifespan of about 3 days

wazu
09-02-2007, 12:26 PM
BUT... her neutrophils are very low. Normal is 1500+ hers is 144.

Do they have any ideas on what is causing that?

chiefs4me
09-02-2007, 12:32 PM
The doctors just came in, and told us the results of the labs.

The blood cultures are negative.

Her white blood cells and hemoglobin has risen to near normal levels.

BUT... her neutrophils are very low. Normal is 1500+ hers is 144.

The neutrophil is what fights off bacteria. So any bacteria comes her way, right now, there are no 'soldiers' to really fight them.

She did have a rash today, which signifies a break in the viral infection, and is a good sign.

However, she is staying another day. So, if you have a prayer ... ask for increased neutrophil creation in her body.

Neutrophil: A type of white blood cell, specifically a form of granulocyte, filled with neutrally-staining granules, tiny sacs of enzymes that help the cell to kill and digest microorganisms it has engulfed by phagocytosis. The mature neutrophil has a segmented nucleus (it is called a seg or poly) while the immature neutrophil has band-shape nucleus (it is called a band). The neutrophil has a lifespan of about 3 days



I saw her picture, she is beautiful.....so glad to hear she is doing better, and prays still coming your way...

MadMax
09-02-2007, 12:53 PM
I wouldn't normally mention this type of thing, but my daughter has been having extremely high temperatures as high 104.6 the past couple of days. And is about to be admitted into Children's Mercy Hospital right now.

This same thing happened about 2 months ago, and they thought they got it under control, but it is back.

More than likely they said they will have to do a spinal tap on her 21 month old spine, and give her an IV in her tiny arm.

Her white blood cells are very low, and her platelets are low.

We don't know what is going on... but please just send a little happy prayer of healing for little Liliana.

Thanks. :deevee:

tw
http://www.cultivategreatness.com/assets/lili2.jpg




God bless her, I will pray for the little angel tonight.

Ari Chi3fs
09-02-2007, 12:58 PM
Do they have any ideas on what is causing that?


they say its either a viral infection or leukemia. But they are 95% certain that it is viral.

:eek:

NUMBER7
09-02-2007, 01:29 PM
they say its either a viral infection or leukemia. But they are 95% certain that it is viral.

:eek:
She sure is a cutie...what antiviral treatment if any have they started her on?

shakesthecat
09-02-2007, 02:08 PM
Thoughts and prayers to your family, Ari.

Logical
09-02-2007, 06:08 PM
they say its either a viral infection or leukemia. But they are 95% certain that it is viral.

:eek:

Make sure they don't leave her on a single antibiotic for too long, you don't want the virus to build up an immunosupressant effect. I really hope she gets well quick, what cutie.

cdcox
09-02-2007, 09:20 PM
Praying of a viral infection that she recovers quickly from. God bless.

kregger
09-02-2007, 09:30 PM
Ari,

Prayers for your little girl and your family. Kids are tough, I bet she'll be fine. We temp our kids with a digital under the armpit. My wife is a ER RN and says it is as reliable as any method.
Good luck and keep us posted.

KcMizzou
09-02-2007, 10:18 PM
they say its either a viral infection or leukemia. But they are 95% certain that it is viral.

:eek:They've got to mention the worst case scenario... just in case.

I'm sure everything will turn out fine.

KcMizzou
09-02-2007, 10:19 PM
Make sure they don't leave her on a single antibiotic for too long, you don't want the virus to build up an immunosupressant effect. I really hope she gets well quick, what a cutie.She must get her looks from mom. :p

Mr. Kotter
09-02-2007, 10:45 PM
they say its either a viral infection or leukemia. But they are 95% certain that it is viral.

:eek:

Trav,

I'm sooooo sorry to hear this about the little one. Our thoughts and prayers are with you. From what the Docs are tellin' you, it sounds like you (and she) will be fine.

As a 34 year old father, I was reduced to a blubbering mass of pathetic masculinity by my oldest going through a eerily similar experience. Pic-line with an antibiotic that had SERIOUS potential side-effects. Everything worked out just fine for us, though.

It was on that day that I once and for all understood the meaning of life. I've never looked at my children the same way since. It was a life-changing experience for me. Give me a jingle if you just wanna talk. PM for my cell/phone numbers. Godspeed, bud.

Rob

Simplex3
09-02-2007, 11:08 PM
they say its either a viral infection or leukemia. But they are 95% certain that it is viral.

:eek:
How the hell do they deliver that little nugget?

"Hey, either she has a cold or she could die. We aren't really sure, but we're leaning toward cold."

WTF?!! How do you deal with that and NOT strangle the doctor?

KcMizzou
09-02-2007, 11:12 PM
How the hell do they deliver that little nugget?

"Hey, either she has a cold or she could die. We aren't really sure, but we're leaning toward cold."

WTF?!! How do you deal with that and NOT strangle the doctor?They always do that.

My mom had lung cancer for two weeks, until it turned out to be sarcoidosis. That was a great two weeks for her...

Ari Chi3fs
09-03-2007, 11:35 AM
PBJ

So, she is going home! It was only a viral infection they said.

Her platelets are normal, Hemoglobin is normal, and her neutrophils are up to 420+, so they tripled. And that was the important thing.

Thank you everyone for all the prayers and good thoughts.

Like I said, I normally don't like to air things like this in a public forum, but many of you guys are so caring, I figured the prayers could only help.

Thanks again!

Jilly
09-03-2007, 12:15 PM
Wow, i'm so relieved to hear this!! I've prayed for you so much the last couple days and I know it's been torture! I wish her continued healing!

Hydrae
09-03-2007, 12:20 PM
:thumb:

Excellent news!

NUMBER7
09-03-2007, 03:21 PM
Thank God! Take care.

Fruit Ninja
09-03-2007, 04:13 PM
Awesome man. :)

Buck
09-03-2007, 04:39 PM
So glad to hear this. :thumb:

FAX
09-03-2007, 05:13 PM
Awesome news, Mr. Ari Chi3fs.

This made my day.

FAX

morphius
09-03-2007, 05:17 PM
That is good to hear!

Braincase
09-03-2007, 05:21 PM
PBJ

So, she is going home! It was only a viral infection they said.

Her platelets are normal, Hemoglobin is normal, and her neutrophils are up to 420+, so they tripled. And that was the important thing.

Thank you everyone for all the prayers and good thoughts.

Like I said, I normally don't like to air things like this in a public forum, but many of you guys are so caring, I figured the prayers could only help.

Thanks again!

DUDE!

Simplex3
09-03-2007, 09:21 PM
Sweeeeeeet...

ChiefsFan4Life
09-03-2007, 09:27 PM
Good news, very good to hear