Ed, hire a hot young escort and take her along the trip with you. She can wheelie your luggage, tend to your needs and throw you a BJ once in a while. Can't thing of any reason why not? Have a blast.......:D

Do they have you on an oral antiemetic? Any relief from OTC or other remedies? (Kaopectate, Pepto, Zantac, Cannabis, etc.?)

Some anti-anxiety medications help cancer patients with certain types of nausea, but they would preclude you from drinking alcohol and have other drawbacks. You might ask your doctor about it.

The only meds I take are xarelto for a massive blood clot and the hydrocodone for pains. I wasn't nauseated, but the coughing is what did it. My gut got twisted up from coughing, then I heaved. Once it calmed down, I was fine. It's a strange, strange ride this cancer stuff.

Hauling wood?

Lifting weights?

You're strong as a horse, have a mind like a bear trap... and by God you're gonna be fine

I didn't get good news today at the cancer center. There are no medications for any of the many mutations that my cancer has. So, that means no immunotherapy. I was even asked if I wished to continue seeking treatment. I said yes. They are sending me to a cancer research center where I might qualify for an experimental treatment that might help me, or not. If that doesn't pan out, I can get some pills that will not do a whole lot for me. The outlook is bleak.

I'm sorry to hear that, Ed. Sometimes things don't go the way that we would like them to, and I'm certainly no stranger to such a situation. Just don't give up. Keep fighting. That's all we can do in this life, my friend.
And who knows? Today's bad news could become tomorrow's good news.
Love ya', brother.

Well, ****, Ed. That's some bleak news but stuff changes quickly. Just keep fighting until things change and you get your good news!

I just got a blood test result in on MyChart. They checked my CEA, the cancer marker in my blood. It sky rocketed to almost 550 in December as the chemo stopped working, so with two months of no treatments, I was expecting to see 1500 to 2000. It's 287.2 and I have NO IDEA how it went down so much.

I'll keep praying Ed, you keep fighting...

We are all on team Ed.

I hope you can just keep setting goals to live for, things that make you happy and give you peace.

Set the next goal for your trip.....and now that Brady has one for his thumb, you can watch in dismay as goodell personally measures Brady for his cock ring for Super Bowl 52. Not sure if it will be smaller than his pinky ring or a wrist watch. Stay tuned, pal.

Interesting. Body fighting back on it's own?

Sorry to hear about the bad news Ed. Keep fighting.

Hmmm. I .... well, I'm calling that good news.

That is the only thing I can figure. Chemo was beating me down and I am getting stronger and fighting back harder. I guess. Or maybe it was that third of a shot of 21 year old Irish whiskey I had on Friday?

I got a call from a nurse at the cancer research center and I go in Monday for the initial paperwork, insurance, and so on junk. I should start treatment the following week, unless something screwy comes up in a blood test, but it looks like I should qualify. Now, this experimental treatment is very broad in scope, being used for breast cancer as well, so it may do nothing for me. But, I have been getting better, I guess, on my own lately. Not only did my CEA drop by a huge margin, my lymph nodes are not bothering me as much and I have not had to take as many pain pills. Thursday night, my appetite kicked in and after I ate dinner, I was hungry again. So, at 10:30 pm, I whipped up 4 eggs, some cheddar cheese, milk, salt, pepper, and made scrambled eggs that I had with 3 strips of bacon and a big glass of skim milk.

Aside from being tired, I am feeling greatly improved. I have to work on some more firewood with the chainsaw tomorrow, but my buddy Chipp is coming to do the most of it. If I feel okay, I will go out later with him and another friend, Dave, to KC Bier Company's third anniversary bash for some fine brews and good German and Austrian food.

Oh, and in other news, I have finished finding directions from my hotel in London to 15 pubs and other points of interest. I am very pleased that so many pubs are close to the others and the furthest is a mere 1.1 miles away. There would be two times where I'd have to take a cab, going to Bailey's Fish and Chips for the best in the area and to the Royal Albert Hall, but even those two are 2.1 and 2.2 miles away. I checked and the cab fare would run from 12 to 15 pounds, so that is under 20 bucks since the exchange rate is .8 dollars per pound now. The thing that excited me most is how close I will be to the Hammersmith Apollo, also called the Odeon, where so many famous groups played in their up and coming days, from the Who, Led Zeppelin, The Stones, Black Sabbath, Hendrix, and on and on.

I was listening to this Guro Fancy pants guy Wayne Dyer the other day and he said that harboring ill will can make you sick with cancer and such. I don't know if you got any deep seeded hatred, but it is just an idea if you do to forgive and let go. I am sure you probably did that already.

The only thing I hate with a burning fury IS the cancer in me.

Amen, brother.

Keep fighting dude, your prayer circle is growing...

Hope the experimental treatment does help. Praying as always.

Good luck to you man! I'm gonna wish on a star for you.

I went to the cancer research center yesterday to meet with the doc and go over the paperwork and insurance stuff. We talked quite a while about my medical history, my trip, and the possible treatment I may receive. There could be a problem with me starting for 2 months and being off for 2 months, but he said DO NOT cancel my trip. He saw nothing that would make him say it was a bad idea to go concerning my health. That was actually a big relief. He totally understands and supports patients needing that time away and I didn't have to convince him that it makes me feel alive again to be away from doctors, needles, and pills.

My treatment is not unique to the cancer center, but a national endeavor, so my doc is not the one in charge of it all, but is in charge of the treatment with me. He wanted to stress that while there are experiments to run, such as a drug cocktail, while I am on the treatment to see how my body reacts to them and how long it takes to metabolize and rid them from my body, I am not a lab rat. He said if he were to just administer a drug on a whim to see what it does to me, I could have his ass for assault and he'd lose his license. The drugs I'd have to take are nothing scary, just caffeine, warfarin, and two others I can't spell, but they are all common things people take. So, for example, if caffeine skews my blood count numbers or makes me feel ill, that data will be collected and one day when the treatment drug is FDA approved, it would probably say on the bottle, "avoid caffeine with this product" or if nothing happens, then it won't. I see and understand the value of the drug cocktail. And damn the luck, I *still* won't be able to have any grapefruit juice. :cuss:

There will be two days where I have to stay at the clinic for 13 hours, which will suck massively, but hey, if I gotta, I gotta. And as if I have not suffered enough humiliation these past 2.5 years, and many of you on here may be envious of this part, I will have to keep... a poo diary. It will be done on something looking like a cell phone. It has 8 different pictures of turds and I press the number that mine resembles the most. The ones I saw were things that have never come out of me: elk droppings, a photoshopped brown banana, and something looking like some weird coral reef. If the most common side effect hits me, the runs, I hope there is a photo of wall spackle on there so I can press that number.

One of the plus side of things is that this treatment is not via I.V., but in pill form. They will have to draw blood a lot, and that will be done through my port. I have a 26 or 27 page consent form with info about the treatment, side effects, what sort of things I must do, and so on, and they sent me home with it, urging me not to just sign the thing, but go over it in depth and talk to family and friends about it first. I like their approach to treatment and it was also stressed that their top priority is my well being, so once again, I am not some lab rat and they give me X just to see what it does to me. Second is treating the cancer and hopefully having good results where my numbers don't rise but go down and I feel better.

Sounds exciting, Ed!

Whenever I THINK I am having a bad day, I think of you Lonewolf Ed and my worries and stress disappear. My issues are trivial compared to your battle.

You are an inspiration and keep on fighting!

I admire your courage and your "Ok, what are we doing next?" attitude. Keep it going Ed, and just keep looking forward to Aalborg!

This x 11ty,000,000,000!

Here are two things I am looking forward to in Aalborg.

My God that looks fun!

Oh yes, it is. The picture of the large structure was actually one man's house, built back in 1624. There is a pub in the former wine cellar and that is where the King Christian IV Guild has the induction ceremonies. I am a lifetime member of the Guild, having been inducted three years ago, and have my own key to the former secret back entrance to the place. The second picture is of my favorite Danish pastry called vienerbrød, which simply means Vienna bread.

It looks very crispy, which I like. Is it very buttery like a French or Swiss pastry? What fruits or savory items do they add?

I wouldn't call it crispy, but firm. The layers seem to be as thin as wax paper. It's not extremely buttery and they add chocolate, plain sugar frosting, and the yellow stuff is... hmm, what exactly is it? I never can quite tell, but it's good! Other Danish pastries have strawberry, raspberry, peach, and apple as the most common fruits. Marzipan is also common.

These all sound like OUTSTANDING developments :clap:

All of them? Did you miss the part where I STILL can't have any grapefruit juice? I want some soooooooo bad!

I just want to see that "pick a poop" device they've given you :D

Must every thread turn into a "poop thread"

Especially next to the photos of those delicious looking Danish pastries! :cuss:

To get your mind back on Danish pastry goodness, I offer these...

How do you drink that stuff? :Lin:

Even when probably a lot of things make you feel nauseous, you still want grapefruit juice?

Blech!

That seems like the best part.. ;)

Actually, I do put a grapefruit in my sour mix.. just don't like the stuff by itself.

Florida's Natural brand is tops. It is not bitter like some canned grapefruit juice is or generic brands. They let the fruit ripen before making the juice.

I've gone through a couple of extended periods of appetite loss in my life when the mere thought of my favorite foods (e.g. bacon) made me nauseous. The first time, the only thing I could think of that sounded good was Taco Bell even though I've never really been much of a Taco Bell fan. The second time, it was Filet-o-Fish from McDonalds. It's kind of weird when that kind of thing is going on.

I went to the research center today and signed my consent forms, got an EKG and lost some chest hair (:cuss:), gave a urine sample, and had blood drawn. Tomorrow, I go to the main hospital on Rainbow, the place I loathe, and have a CT scan. Since they were able to get me in for a scan tomorrow, that will move my treatment schedule up about a week. And most important to me, there will be no conflict with my treatment and my upcoming trip. It will be over before I leave. I do not look forward to the two clinic days where I will have to sit there for 13 hours or the pint of blood they will drain from me over the next 7 weeks.

I'm glad you've got another trip coming up. They always seem to do wonders for your spirit. Keep us posted!

Here is the timeline: I leave KC on April 24 and arrive in Aalborg on April 25; on April 27 I am throwing a big party in the Irish House for my family and friends and have 22 confirmed so far, waiting to hear from 8 more; I am going on a side trip to London from May 2 to 7; then I am back in Denmark until June 20. My friend Chipp will be flying over with me and staying for 2 weeks, but he wanted to stay longer. He is going with me to London, too. My brother and nephew will be arriving the same day as I do, but a few hours later. My nephew is staying for 3 weeks and my brother for 6.

Sounds awesome, man. Be sure to post up some pics!

You need to wear Chiefs stuff to the party and have the room learn the tomahawk chop!

Dude , You are livin life large. Kudos ! Don't know if you realize it but I'm sure there's a shit load of people envious of you ! Well, you know what I mean.

I certainly am. I haven't traveled abroad in far too long. Ed's stories on the road bring back a lot of good memories!

I just gained 5lbs looking at them!

That's all? You bitch! :harumph:

Why don't they just have you take a picture of your poop and send it in? It seems like there would be a lot more cross-patient reliability if they had a third party "scorer."Raiduhs:shrug:

Are you one of those scat freaks? :eek:

Hi Ed...nice to meet you

Do you have pancreatic cancer?

Are you/they concerned about pale stools?

No, I have colon cancer that metastasized to my liver and was at Stage IV when I was first diagnosed. It has since spread to lymph nodes in my abdomen and my lungs. The cancer in my colon is gone since they hacked out 9 inches of the thing in August of 2015. If pale stools were ever mentioned, it must have been once and I said no, since I really can't recall if my doc and I have ever talked about that aspect of it.

Wow, God bless you Ed..you're a true warrior, brother.

I saw a photo of the CT scan I had this past Saturday and one from two months ago. The existing cancer in my liver and lungs has grown and there are new spots in both, plus another lymph node. If this new treatment I am about to begin does nothing for me, I may not make it past August after all.

Stay positive, Lonewolf Ed.

Keep fighting brother. We're supporting you from afar!

Keep fighting, don't ever give up...

I had some strange questions posed to me at the clinic, too. The oddest was, "Has diarrhea adversely affected your sexual activity?" Whaaaaaat? Ummm, how the hell wouldn't it? Browning the sheets isn't very sexy, in my opinion. So, why ask that and why now? How come they never asked me, "So, has having 9 inches of colon chopped out and that big scar in your gut up to your navel that we sliced through nerves so you can't even feel your junk affected your sexual activity in any way? How about the bi-weekly poisonings we pump into you? Anything not working like it used to?" :#

How would you rate your cancer experience?

a) great

b) awesome

Umm, I honestly have never tried.

No time like the present! ROFL

Baby sitter porn? Please elaborate. Thank you.

It was not quite like that, but the question about the runs and my sex life was just plain strange!

Keep fighting Ed, we'll be praying that this new treatment helps reverse things. Keep your mind on Denmark!

Browning the sheets? ROFL

Sorry about your CT Ed. Stay positive and focus on the good in your life. All the best from my end of the state.

You're the "dad", the hot young baby sitter comes to watch the kids, then at the end of the night you wind up alone with her to "pay" her.

You give it to her real good! :D

Got it. How old are these "babysitters"?
Don't want to get in Dutch with the law.

I hate to break up the baby sitter discussion, but I have prepared a speech for my party I am holding in the Irish House on April 27th, and thought maybe some of you might like to read what I plan to say. I hate speaking before groups, but I think it is called for here, so I have to grin and bear it. Just a reminder what the party is about, I have invited my cousins and their spouses, and friends I have made over there. I used to make it an early birthday party, but this year it is a gathering of family and friends. I bet I get presents anyhow...

In Danish: Hearty welcome, good friends and family and thanks for coming. This is a special place and it is good to see you all here.

In English: First, I would like to introduce the owner of the Irish House, Jerome, and thank him for all the work to make this party happen. Also, welcome to my nephew Alan making his first visit here, and welcome back to my brother Darron and to Chipp. Even when I am not here, I feel like part of me is always here in Aalborg. I have so much to come back for here in people and places. Denmark is part of me and I feel it in Aalborg, Vrensted, Løkken and places like the Irish House. I hope that in some small way, I am part of those places, too.

Two years ago, Darron, Chipp, and Rod joined the King Christian IV Guild after me. I saw to that in part so that they would be part of Aalborg, too. So if I am gone, (looking at Darron and Chipp) you can still come back here on your own and I hope that you will. But, if this is my last trip here, let it be sad after I am no longer living. I want to celebrate with you all that I am here now and I will be here tomorrow and the day after that. Right here and now, I have family and friends and good food and drink in one of my favorite places. For me, this is a fine moment in life to share.

In Danish: To friends, to family, to life. Cheers!

Sounds very very good to me.......now let's get back to the baby sitter porn! ROFL

Hey, what if we combine your trip to Denmark with baby sitter porn?

You up for a starring role as " the strong single Danish Dad" who is raising two young girls all by himself?

We could get a hot young Danish girl of around 18 to be your kid's babysitter.

It would feature you eating some of those Danish pastries you posted photos of off the hot babysitter while she is topless.......:D

I'm sure that speech will be appreciated by all, Ed. They will remember that moment!

No one wants to see me in any such scenario, believe me.

You really don't think we are going to be focusing on you do you? ROFL

I'm going to be looking at the Danish pastry

"Let it be sad" works, but I think you meant "let it be said". :)

Either way works....

Stay strong and positive friend, prayers and thoughts your way.



ROFL And spoken in true Ed form too.

FTR, I agree, I think that is the way I would probably them too. straight up and forward like, Are you F*****g kidding me?

I think he meant what he wrote. You're wrong

Cool that you've gotten to form such a connection with Denmark, man. I'm hoping to do the same with Scotland/Norway one day.

Nope, I meant sad. I want it to be a happy party.