Originally Posted by Lonewolf Ed (Post 12756028)

Since hydrocodone was making me throw up anywhere from 4 to 6 hours after taking it, I went with Aleve and Tylenol for my pains, but my docs said not to take those and I got a new med today, oxycodone. It was in me for two hours and then brought half the pizza I ate for dinner out rather forcefully. I had a lot of clean up to do around the toilet, but it could have been worse. I literally had just gotten out of the bath tub and was half dressed. I hope the next thing to try isn't morphine.

Originally Posted by TigerUppercut (Post 12756716)

Zofran ODT, wait 20 minutes. Take roxicodone. Worth a try.

Originally Posted by Easy 6 (Post 12756796)

The Fast Eddie Ragnarok Train just keeps chugging on... :rockon:

Originally Posted by Lonewolf Ed (Post 12760574)

I had no idea that my thirteen hour clinic day would include a total of nine blood draws.

Originally Posted by Lonewolf Ed (Post 12755018)

I hate to break up the baby sitter discussion, but I have prepared a speech for my party I am holding in the Irish House on April 27th, and thought maybe some of you might like to read what I plan to say. I hate speaking before groups, but I think it is called for here, so I have to grin and bear it. Just a reminder what the party is about, I have invited my cousins and their spouses, and friends I have made over there. I used to make it an early birthday party, but this year it is a gathering of family and friends. I bet I get presents anyhow...

In Danish: Hearty welcome, good friends and family and thanks for coming. This is a special place and it is good to see you all here.

In English: First, I would like to introduce the owner of the Irish House, Jerome, and thank him for all the work to make this party happen. Also, welcome to my nephew Alan making his first visit here, and welcome back to my brother Darron and to Chipp. Even when I am not here, I feel like part of me is always here in Aalborg. I have so much to come back for here in people and places. Denmark is part of me and I feel it in Aalborg, Vrensted, Løkken and places like the Irish House. I hope that in some small way, I am part of those places, too.

Two years ago, Darron, Chipp, and Rod joined the King Christian IV Guild after me. I saw to that in part so that they would be part of Aalborg, too. So if I am gone, (looking at Darron and Chipp) you can still come back here on your own and I hope that you will. But, if this is my last trip here, let it be sad after I am no longer living. I want to celebrate with you all that I am here now and I will be here tomorrow and the day after that. Right here and now, I have family and friends and good food and drink in one of my favorite places. For me, this is a fine moment in life to share.

In Danish: To friends, to family, to life. Cheers!

Originally Posted by Cochise (Post 12762607)

Dang Ed, that's a lot of juice. Hope there is some gatorade in your near future.

Originally Posted by Lonewolf Ed (Post 12762805)

I threw up violently about 10:45 pm, so that set me back yet again. Once my gut was calmer, I took a stronger anti-nausea med and two oxycodones. My skin is so itchy now, it woke me up so in a haze I sat here and put skin lotion on myself, but it still itches. I hope it is just this winter air and not some new cancer crap side effect. I had been avoiding that particular anti-nausea med because one of the warnings was it has been shown to kill elderly dementia patients.

Originally Posted by Lonewolf Ed (Post 12764594)

Gitte is one of my favorite bartenders at Café Frandsen in Løkken. Danish girls are so hot!

Originally Posted by Lonewolf Ed (Post 12764594)

Gitte is one of my favorite bartenders at Café Frandsen in Løkken. Danish girls are so hot!

Originally Posted by Gonzo (Post 12762818)

Ed, that's a common side effect of strong narcotics and lotion won't help. It's your nerve endings having a field day. You're very sensitive to the drug. Try cutting them in half. You may also notice some digestive issues, (more then you normally do). Oxy can seriously slow down your plumbing.
If all else fails, ask your doc about codine, tramadol or bupenophrine. Those are lower level scheduled narcs.

Originally Posted by Buehler445 (Post 12769824)

**** man. Stay strong.

Damn it. I haven't been feeling very good the last few days but I need to get off the pity party and go to work.

You're the man Ed. Keep fighting. Don't be a pussy like Buehler445

Originally Posted by Lonewolf Ed (Post 12771885)

I've hit a snag with my treatment. It was supposed to actually begin today, Tuesday, but yesterday, my blood test revealed an extremely high bilirubin count, which usually means a blockage in the liver or gall bladder. After I got home Monday, I took a pain pill and within 15 seconds, violently threw up several times. It was bad enough that I was gasping for breath and holding onto the sink to keep from going to the floor. The nurse called me a bit after that and said they had me scheduled for an ultrasound at 4:30 pm. That went strangely. The tech couldn't find my gall bladder so she really started pushing down hard on my abdomen, which hurt like hell and is a major reason why I am awake at 3 am writing this.

She eventually found it, hiding away and contracted. I asked if that was good or bad. She said it was good, looks fine, and is just trying to make room for my swollen lymph nodes and all. At least one of my organs isn't trying to kill me. So, with no blockage, the mystery remains, why do I have the bad numbers and why am I throwing up so much? My treatment has been suspended and I don't know for how long. I can't eat much anymore and my weight is rapidly dropping, which for cancer patients, is not a good thing. I am down to 193 lbs. and was at 220 lbs. near the end of November last year.

Originally Posted by rabblerouser (Post 12771912)

Ed, my friend, I hate to read this.

Have you considered medicinal cannabis?

Originally Posted by Lonewolf Ed (Post 12772078)

The appeal is growing. As for my throwing up, I have a feeling it's the morphine, so my body doesn't like anything ending with "codone" or morphine. It's just a tiny little pill, 2 mg of the stuff, but it sure can make me feel like I could turn my guts inside out.

Originally Posted by Lonewolf Ed (Post 12771885)

I've hit a snag with my treatment. It was supposed to actually begin today, Tuesday, but yesterday, my blood test revealed an extremely high bilirubin count, which usually means a blockage in the liver or gall bladder. After I got home Monday, I took a pain pill and within 15 seconds, violently threw up several times. It was bad enough that I was gasping for breath and holding onto the sink to keep from going to the floor. The nurse called me a bit after that and said they had me scheduled for an ultrasound at 4:30 pm. That went strangely. The tech couldn't find my gall bladder so she really started pushing down hard on my abdomen, which hurt like hell and is a major reason why I am awake at 3 am writing this.

She eventually found it, hiding away and contracted. I asked if that was good or bad. She said it was good, looks fine, and is just trying to make room for my swollen lymph nodes and all. At least one of my organs isn't trying to kill me. So, with no blockage, the mystery remains, why do I have the bad numbers and why am I throwing up so much? My treatment has been suspended and I don't know for how long. I can't eat much anymore and my weight is rapidly dropping, which for cancer patients, is not a good thing. I am down to 193 lbs. and was at 220 lbs. near the end of November last year.

Originally Posted by Gonzo (Post 12772440)

Yeah, man it's time to seek other methods for pain. You're way too sensitive to narcotics. See my earlier post about alternatives. There has to be something.

Weed might do the trick. Plenty of guys on here might be able to help you out there.

Originally Posted by Lonewolf Ed (Post 12774015)

My brother lives in Colorado, so should I need some alternative meds, he can help me out there. Thanks, though!

In other news, I took a strong anti-nausea med last night and half an hour later, timidly ate an apple. It stayed down. That was at 9 pm. At 3 am, I was in need of another pain pill and I had a small bowl of Cheerios with it, and that stayed down. For breakfast today, I had two boiled eggs, yogurt, orange juice, and a Boost. It's still with me. I am sleepy, but feel almost good. My brother said I look much better today and not like I was about to fall over at any moment like I looked the past two days.

Originally Posted by Lonewolf Ed (Post 12774015)

My brother lives in Colorado, so should I need some alternative meds, he can help me out there. Thanks, though!

In other news, I took a strong anti-nausea med last night and half an hour later, timidly ate an apple. It stayed down. That was at 9 pm. At 3 am, I was in need of another pain pill and I had a small bowl of Cheerios with it, and that stayed down. For breakfast today, I had two boiled eggs, yogurt, orange juice, and a Boost. It's still with me. I am sleepy, but feel almost good. My brother said I look much better today and not like I was about to fall over at any moment like I looked the past two days.

Originally Posted by Gonzo (Post 12772440)

Yeah, man it's time to seek other methods for pain. You're way too sensitive to narcotics. See my earlier post about alternatives. There has to be something.

Weed might do the trick. Plenty of guys on here might be able to help you out there.

Originally Posted by scho63 (Post 12775381)

For what it's worth Ed, your story and battle was a small part of my inspiration to make the decision to resign from my 100K job after 6 years and move to AZ to work on my health and well being for the next 6 months and screw any work.

Originally Posted by Lonewolf Ed (Post 12777984)

I am no longer going to be getting the experimental treatment. My bilirubin is still going up and that means something is blocking the bile drain down in my liver, probably the cancer tumor. I am jaundiced and it is probably also what has been making me throw up, so it may not be the narcotics. The doc even said it may be making me itchy, but I was not jaundiced when that all started. I am going back to my original team, so what happens next, I have no idea. I am worried about my body not allowing me to go on my trip, and if I don't go, I know that will be a factor in me dying.

Originally Posted by Dave Lane (Post 12775708)

Let me know if you need help.

Originally Posted by DaNewGuy (Post 12778298)

Not to already harp on the weed but I really wish my old man had started smoking before he passed away, the cancer cause him to not be able to eat. He was just so against smoking pot and I really think it would of helped him but ed like everyone else please brother start with some edibles if the smoke is too harsh or vape instead, as always your in my thoughts viking warrior

Originally Posted by Lonewolf Ed (Post 12785394)

I had a very rough day yesterday. Pains were way up. I think I need new meds as they are messing up my stomach and I threw up some blood twice. Today, I go in for a liver drain to be placed in me. Slicing and prodding begins at 3:30 pm at the main KU hospital. If it allows my liver to drain bile, it should be a huge help, but drain it where exactly? This stuff is scaring me, guys.

Originally Posted by Lonewolf Ed (Post 12786621)

I have too many lesions blocking bile ducts, so the procedure didn't work. They did find bleeding in my esophagus and cauterized that, so I should stop puking blood. Next step, interventional radiology next week, maybe. They will call tomorrow.

Originally Posted by Lonewolf Ed (Post 12786621)

I have too many lesions blocking bile ducts, so the procedure didn't work. They did find bleeding in my esophagus and cauterized that, so I should stop puking blood. Next step, interventional radiology next week, maybe. They will call tomorrow.

Originally Posted by Cochise (Post 12788382)

Your doc will give you Zofran, Dolasetron, Zyrpexa, or similar, and those work. Give the doc a ring, Ed.

Originally Posted by Lonewolf Ed (Post 12792624)

I made it through the procedure and already there is a lot of bile in the bag, plus what is draining internally into my small intestine. Thank God for something finally working. My eyes were glow in the dark yellow today so I was worried about the jaundice. I am being kept overnight, but not complaining. The nurses will show me twice how to tend the bag and drain, so I am grateful for the pros being blue to take more time with me before I flush and care for it on my own. I even ate well, 3 of 4 pizza slices, carrots, celery, cherry Italian ice, and ginger ale. Moving into my bed had me moaning and grimacing but a liquid dose of hydromorphone burned and about sent me for nap time.

Originally Posted by Lonewolf Ed (Post 12792624)

I made it through the procedure and already there is a lot of bile in the bag, plus what is draining internally into my small intestine. Thank God for something finally working. My eyes were glow in the dark yellow today so I was worried about the jaundice. I am being kept overnight, but not complaining. The nurses will show me twice how to tend the bag and drain, so I am grateful for the pros being able to take more time with me before I flush and care for it on my own. I even ate well, 3 of 4 pizza slices, carrots, celery, cherry Italian ice, and ginger ale. Moving into my bed had me moaning and grimacing but a liquid dose of hydromorphone burned and about sent me for nap time.

Originally Posted by Lonewolf Ed (Post 12796267)

Something very unexpected happened today and I needed it. My doorbell rang about 10 am and it was Pastor Kris from my church, St. Mark's Lutheran, where I have not gone in two years due to cancer stuff. I was afraid they might think I was dead. It turns out that our vet, Doc Knappenberger, gave her our address. She lives in Perimmon Hill, so we're practically neighbors. She gave me Communion which I've sorely missed, and then annointed me with oil for an extra blessing. She is going to see me every week and bring me Communion until my trip and then once I return. Thank you, God, for this gift today! I have to stop typing now because I can't see so well through tears.

Originally Posted by Lonewolf Ed (Post 12796267)

Something very unexpected happened today and I needed it. My doorbell rang about 10 am and it was Pastor Kris from my church, St. Mark's Lutheran, where I have not gone in two years due to cancer stuff. I was afraid they might think I was dead. It turns out that our vet, Doc Knappenberger, gave her our address. She lives in Perimmon Hill, so we're practically neighbors. She gave me Communion which I've sorely missed, and then annointed me with oil for an extra blessing. She is going to see me every week and bring me Communion until my trip and then once I return. Thank you, God, for this gift today! I have to stop typing now because I can't see so well through tears.