Somehow I missed this thread from the beginning, and I wish you the best man. Even though you've been thought of as "Sac of shit" in my mind from your draftplanet days, I still wish the best for you, and I'm sure with some fight you can overcome whatever comes in your path.

Throughout history many cultures have judged the greatness of their tribes based on the strength of their enemies.


I advise you to buy a bag of beach nut, because some of you guys have the chance to be Josie Wales.

Take care of yourself man..eat healthy, exercise, and get plenty of rest..keep yourself in good shape..take this negative and turn it into a good reason to take a trip somewhere you always wanted to go..go meet some of the linemen from Utah you can't get enough of

Good luck man..sending positive thoughts your way

Huh...I was really thinking about starting to drink heavily, smoking dope and sitting in the basement watching Cartoon Network.

Maybe I'll have to re-think my end of days priorities...

Get rid of the cartoon network and replace it with strippers and blow

Ugh I loathe closed MRIs.

Open MRIs are a cake walk, but loud as ****. Well, they're all loud.

Just think of Marie Osmond.

I had a 45 minute closed MRI on my shoulder. I fell asleep, but remarkably stayed still so they didn't have to re-do it. The tech couldn't believe I was asleep with all that clanking going on. Four hours would have been pretty ****ing excessive, though.

Given the circumstances, your attitude and positivity is remarkable. Best of luck with everything, Saccopoo.

45 minutes? **** that. I've never been in one for more than 30.

Four hours and eight minutes last night. With one two minute piss break.

It was glorious!

Holy ****ing shit! Why so long?

Four of them lined up continuously because I've got three doctors meetings next Tuesday and they had to have a post op brain scan and the three spinal scans. Scheduling conflicts due to insurance/main provider/hospital issues and that everybody in the Salt Lake valley had MRI's scheduled for this week meant that I got to do all four at once/consectutively from 4:00 pm to 8:00 pm last night - because that's the only opening that they had this week.

So I got to lay in the cement mixer for four hours having the best of times.

Did one of those nurses offer to blow you? Because they should have after four hours in that contraption.

No ****ing way. I don't think I could tolerate that in an Open MRI.

I believe these belong to you...https://teamowens313.files.wordpress...1big-brass.jpg

You know, about two hours into it, I had the exact same thought.

Dem bitches owed it to me! (Actually, the girl at the front desk would have been quite acceptable. Rather cute.)

I started wondering if I was going to make it once my right leg started cramping up with about 45 minutes to go. I just kept thinking that some poor bastard out there was having a worse time of it than me somewhere on the planet. I remembered the story of General "Devil" Dan Sickles at the battle of Gettysburg where he got his leg blown nearly off by a cannon ball and he bent down, cut through the remaining meat with his pocket knife, severed the leg completely and then led the charge into the Confederate lines.

I was thinking that that had to have sucked worse than my 45 minute leg cramp, so I got through it okay.

This is what an Open MRI looks like, in case anyone was wondering... http://www.huntregional.org/sites/ww...maging/mri.jpg

That seems a lot nicer than the tube.

Were you given Contrast?

That shit makes me nauseated. But only for a few minutes.

I have only had to endure CT scans. It's sort of like being slid into a giant donut. I hear a recorded voice telling me, "Hold your breath." It spins around me, slides me out, and says, "Breathe." Then it repeats.

Oh, hell yes! You can spread your arms out.

It always burns inside my gut and bladder, like I have to take a very hot leak, but never made me feel ill.

Yeah, CTs are cake. I've done a few and it's only a few minutes.

Oh yeah. Twice, I believe.

I'd like to meet the designer of a closed MRI and stand on his neck.

Since this is the official brain cancer/tumor thread I thought I'd post this here.

My dad has been fighting a terminal form for a while now. They gave him 12-24 months and this Dec will be 24 months and he's doing better now than a year ago. These things come and go and are completely unpredictable but I'm planning a big thing in Dec if he might/could make it.

That said out of the blue he told my mom (his ex) that "It doesn't matter. I'll be dead in 3 weeks. Do whatever you want."

????

Now in all fairness, he hates her. I'm not a big fan myself. But he's a very positive minded guy and for him to spit that out...odd.

Sounds like a hearty cock punch is in order. Maybe not the inventor of the MRI inventor, but somebody needs a cock punch.

And it looks like the rash I was told about has hit me. It's on my face mostly. Look away... I'm hideous!

Face rash?

Sexy.

I hear it's all the rage in the inner jungles of Myanmar.

praying for both of you

Open MRI have come a long way. But they lack the detail given by closed MR's.

I can't believe they didn't offer to give you some mild sedation, Sac.

The stuff they gave me, using dna from my colon tumor, is attacking the gunk it spewed into my bloodstream and the nurse said if it worked, I'd get a nasty rash. It will look like chicken pox and once it dries up, then it will attack my finger and toenail beds. Oh the joys of cancer...

I gave myself a mild sedative. I purposely didn't sleep but about two hours the night before. I did manage to solidly doze off for a while, but when that last hour kicked in I was in a little bit of a state. Turned into a mental versus physical game at that point. Kind of an interesting self introspection really.

It's okay. It's over and the real fun part is going over that shit with the doctors on Tuesday. I'm not sure what happens if that cancer shit got into the spinal cord. Not sure I really want to know actually.

Weird thing is, I feel absolutely fine. Don't feel any different than I did ten minutes to passing out and then going to the hospital finding out that I had a meatwad in the brain. I don't really know how a person dies from this shit, but I feel great right now like nothing is wrong. In fact, I'm going back to work tomorrow and looking at buying a long board this week to cruise on. With my terminal brain cancer.

It's pretty surreal.

Love your attitude !

Yeah, I've been told by 2 drs that the image quality isn't quite as good as closed. The MRI I had in june did show the last tumor, which was about the size of a Nickel. That was in an Open.

Loved the update man. You're inspiring, which is surprising given your crap takes on all things football.



I kid, I dig those too. Keep that positivity up...the world needs more.

Yes, and while I'm standing on his neck.

I can relate. Aside from the colon cancer making my lower abdomen hurt, the cancer wasn't what was bothering me. It's the side stuff from the chemo, the infection, the blood clot, and so on, that is miserable. As far as I can tell, my liver doesn't hurt. The side of my nose does hurt some from my rash, which looks like it did when I was 15 and ate too much pizza. Can't pop these, though! Nurse said leave them alone.

Hey, Sac. How are you doing? Updates?

Just sucked down my first dose of Temador (chemo pills) five minutes ago and they'll start microwaving my head tomorrow.

I planned on being somewhat cautionary on the first day of this bullshit and have taken the day (tomorrow) off from work.

Otherwise, I really haven't felt any different from before the seizure a month-ish ago that led to this bullshit. My head gets a little "swimmy" if I lay down or bend over quickly, but that's about it and I think that's probably a result of the brain surgery itself. (They put off my radiation therapy start for a couple of weeks as the doctor wanted the melon to heal a bit more.)

Oh, and all the parts for my new long board got here this past week and I put it together this weekend. (Although I did spend the first half of the Chiefs/Vikings game taking off my trucks and putting them back on correctly as I had them backwards initially.)

And I had a "sure thing" date this past week (amazing how the official Sac's "Make A Wish Foundation" thing can work on chicks, and I'm definitely not passing on cancer pity sex, though the doctor told me not to impregnate anyone once chemo starts as I might spawn some three eyed flipper babies), but I drank two bottles of wine and apparently alcohol and the anti-seizure medicine doesn't play nice with each other and I passed out on her.

Go figure...it's been that kind of month.

Oh, and this is what I ended up with on my long board choice:

Gold Coast 44" Standard Red Pintail:

http://cdn.daddiesboardshop.com/medi...1435169286.jpg

Tracker Trucks Fastracks 180mm:

http://jibelongboards.dk/app/uploads...lank-180mm.jpg

Kryptonics Star Tracs 70 mm:

https://asset1.surfcdn.com/kryptonic...07T1nUj&V=xbZM

Took it for the trial run after the Chiefs #1 Pick In the 2016 NFL Draft Paxton Lynch Victory over the Vikings. Pretty cool, although it's completely different than the standard skateboard with kicktail. I'm not exactly sure how I'm supposed to manuever over bumps and stuff in front of me...

I bet that board looks kickass.

Cancer pity sex? I thought that was a myth! Damn, I must really have no game. I can't even get any women to flash me.

Good to hear, Sac.

I had Temodar last year. Only side effect I experienced was some Nausea.

Did they make you a plastic mesh mask to stabilize your head for radiation?

I still have mine.

Yep. Got the Death Mask of Doom made a week and a half ago.

Pretty wild. Felt like a warm barber shop towel going on and then it turned into the thing from Alien on John Hurt.

Had my trial sonar run last Friday in prep for the nuking this afternoon and the first song that comes on was GNR's cover of "Knocking on Heaven's Door." Nurse nearly broke an ankle running to change the channel. I couldn't stop laughing.

https://s-media-cache-ak0.pinimg.com...7c70d32bf8.jpg

Ha! I am glad you are still laughing. I was teasing some friends over what music I would use for an intro and at the end of my trip DVD, and I said I was thinking of In My Time of Dying by Zeppelin and Waiting For Darkness by Ozzy. One of the girls had the nerve to call me an ass. ROFL

Sorry about the news, sacc. Stay positive, sir. Your positive attitude makes me think you'll beat the hell out of this!!

Keep whipping ass, and that skateboard looks awesome! What kind of bearings do you use, hell I have not skated in so long they may not even use bearing anymore.

You don't ever really beat Stage 4 Glioneuronal brain cancer. As the oncologist said "treatable, but not curable." They might delay the progression of the cancer cell growth, but I have no doubt that this is what is going to punch my ticket eventually. (Unless I kill myself on the new long board, and based on my riding skills, or lack thereof, that's a real possibility.)

And the real problem with brain cancer (and most organ cancers) is that they can't cut out the bad parts of a brain to make it go away completely.

That being said, I had no illusions about living forever. We all end up going somehow, someway. I've had friends killed in car crashes, one cousin died at 13 from cystic fibrosis and another cousin just keeled over two days after this past Christmas from a massive heart attack and he was in perfect health - up to that point. I've also had two grandparents live to 98 and 99 and my reamaining grandma is still kicking just fine at 93.

You just never know and just need to live life as well as you can, which I plan on continuing doing for as long as possible. Like I said, I don't feel any different so we'll just do what we can to keep that rolling, but I'm not going to flip out and start eating New Guinea tree bark in a false hope that it's going to miraculously save my life - because we all end up dead regardless.

I picked up some Bones Red bearings. While the ceramic bearings are all the rage, I wasn't going to spend more on bearing than I did for trucks and wheels combined.

The Reds are pretty damn fast on their own. In fact, I'm trying to figure out how to stop this son of a bitch since it goes from zero to a million in a hurry.

Hang tough man, you can do this!

Oh, and sweet ride! VERY sweet! Yeah, that takes me back a few years. I was always a Bennett Pro rider, but I think tracker won the battle...

Between skate and surf boards, I needed work to keep up..

No you do not.

Keep your spirits up and fight the good fight.

Great attitude, man. I seriously doubt I'd have the same tune. That's some powerful stuff. Either way, I'm cheering for you. Stay alive as long as possible because CP wouldn't be the same without you!

Hang in there Sacc. Prayers sent man.

Glad you are in a good frame of mind. Also glad you knocked off some poon.

LMAO I would have pissed myself.

Yeah, when they first put the mask on, I didn't want them to take it off.

The best part about the radiation is it doesn't take long. Like 15 min.

I have radiation coming, I just don't know when yet.

Yeah, that ****ing sucks. My Glioblastoma is stage 4 and we're pretty much in the same boat. It's about quality of life and prolonging it.

The longest survival I've found with this is 15 years, and that is rare. I'd be thrilled with that. I'll be 45 friday. The fact that I'm in my 40s and not 60s or older helps a lot.

Do you know if there is a cause to Neuronal? There is no known cause to Blastoma.

Have they said anything about any clinical trials?

To both Sacc and Dave, I am glad to see you're not giving in and giving up. I've never been told since my initial prognosis of having 3 years left IF I was lucky that I am going to make it past that or that I will beat it. I don't really have much of a bucket list, but I encourage you both to do the things that you have yet to do and want to, because that is all part of living well and appreciating the good days we have as we fight cancer and endure horrid treatments.

I fully intend to go back to Denmark next year and make a side trip to Scotland, maybe staying at Loch Ness for 3 days and Edinburgh for 3 days before flying back to Aalborg. There are other places I want to visit before I go, including Ireland, Prague, Vienna, and England. I even have a theme name for my England trip: The Great Castle, Pub, and Countryside Tour. I'd start out in London, hit the pubs, see some of the sights, eat some fish and chips, kick over some "Sharia Law Here" signs, and head out to the Cotswolds and maybe make a day trip to Birmingham to see where some of my favorite musicians are from.

If I never get to go to some of the aforementioned places, I still have fun researching things to see and do there and making plans in my head for the trips. With us and our possibly shorter than expected life spans, it is about quality of life and hopefully checking out with no regrets. That doesn't mean we have to fall into debauchery or hedonism, but we owe it to ourselves to live as well as we can. I am grateful for each and every good day I have, even good parts of days when things are not going so well. I also hope to do some good for people while I am here. People tell me that I inspire them, and I never imagined myself in such a role, and I still don't fully understand it, but I am glad to know that I am able to affect others in such a positive way. I am far, far from perfect but I do know that I am a better man now than I was before the cancer, and with continued prayers and support, I aim to keep it that way until I do take that last breath, whenever that may be. And as I have mentioned before, when that time comes, if I still have my faith in God, then I will have won.

Late to this but hang in there brother...thoughts and prayers headed your way, keep kicking ass.

Same to you Dave!

God damnit life is so short. I need to start enjoying it more...:( So much stuff I want to do and see.

You three guys Saccopoo, Lonewolf Ed, and BigMeatball Dave have shown an incredible amount of courage, strength and humor during what is an incredible difficult time in your lives.

That being said, keep fighting the good fight and if anything takes you out, it will be the horrific play of our Chiefs!

Good luck and continued prayers.

Keep up the fight, Sac. You and Ed and Dave are always in my thoughts.

No homo, but maybe for a second or two if it would help.

Ditto this. You fellas remain on my daily prayer list.....and it's a damned powerful list too. Hmmmm, maybe I should add the Chie.....oh wait, never mind.....God doesn't care about the Chiefs. At. All.

Keep on fighting gentlemen. You are truly inspirational. Kudos.

Pics or gtfo.

Just got back from the initial treatment.

Had to sit in the waiting room with a couple of demented geezers just babbling about nothing.

If I end up like that, I'm throwing myself off a bridge.

Shit...I already told everyone that in ten years I was going to head up to Yellowstone with a bucket of gravy, chocolate and peanut butter and walk into the woods, pour it over my head and let the bears eat me.

I mean, you know how gross old people sex is? ****ing disgusting.

They don't know what causes the glioneuronal. They hypothesize that it's stem cells aggravating the nerve cells in the brain which in turn sends the surrounding cells into a tailspin. It's a multicell tumor with two or more elements of malignancy. (Mine has three apparently.)

The problem with Neuronal is that it's so rare that most of the companies/research facilities running trials/experiments don't have it included and don't want it because it screws up the bell curve for their studies. They want baseline tumors for the continued results of their tests.

The hospital did send part of the meatwad up to a new lab in Boston that is going to do some gene sequencing on the tumor to help trace the cell divisions and other such shit. They were thrilled to get their hands on some Neuronal tumor from a healthy subject apparently. (It was the first thing that I signed off on post op.) I don't really know if it's going to help me, but more along the lines of providing more for future generations.

I was shocked at how fast the radiation treatment went today. Just minutes. Feel a little queasy, a little tingley on small areas of the scalp and a little tight on the neck muscles (which could have been me just clinching during it thinking that my head was going to explode like a ****ing potato in a microwave). But that's about it.

I have to say, the brain hole/meatwad extraction was the easiest part of this whole deal. Spinal tap sucked balls (after effects were brutal - you just don't expect them to be like that), the four hours in the MRI tube was grotesque, then the radiation, then the chemo pills, then the meatwad extraction (in order of most to least suckiness in this process so far).

You don't have to go to that much trouble in Yellowstone. Moose and bison are very common to encounter. You just have to get close to one before some idiot with his camera does. I've seen it before... a guy kept walking right up toward a bull moose with his camera and the moose stared at him, snorted, and raked a hoof on the ground. He kept walking closer. I had my camera out and was at a safe distance, waiting to see if the moose would charge him, but the moose didn't. That is not always the case.

Whenever I start to grouse too much, I try to remember you three.

This is spot on. I have done the same a few times myself....

Just remember that I have sold my body and soul to the great but demanding gods of football in order that the Chiefs suck in 2015 and are able to get the first pick in the 2016 Draft and they pick a huge, cannon armed QB who leads them to the promised land.

I did this for you.

For all of you.

For all of us.

Go Chiefs!

http://media.jrn.com/images/paxton_l....0_640_480.jpg

Looks like a young Marino.

I'm getting vaklempt...

Thank you Mr.Poo

I handled radiation well. Only issues were Fatigue and hairloss.

How many treatments are they giving you? I had 30 last year. And Temodar was 250mg/ day for 42 days.

33 scheduled, but they are going to throw in one or two more for good measure because of the Thanksgiving break.

160 of Tem for the same amount of time, then it bumbs up to 200 (I think) for two additional weeks, or so I seem to remember the oncologist saying such things.

Truth be told, the nuking machine freaked me out a bit and I definitely know that something happened up there. The top right of my head is "warm" and just a bit puffy; have a slight moment of a headache every now and then and there's a dull tingle every once and a while in the warm spot.

That is some scary stuff. I have not had radiation, but there is the possibility that at some point I will get a treatment where my liver will be hit with radiation in the tumors. It's some very scientific stuff with my liver being mapped out and computers involved to isolate the area of effect. I don't like one treatment my doc described where it would block the artery into my liver and cut off the blood supply to the tumors, as that could cause liver failure. I might have to just refuse that one. I am not keen on a transplant, either, though that has never been discussed. My liver works just fine and I like it that way, so once this current treatment is done, I can enjoy a brew or two again.

I feel for you two with the radiation and so many treatments. I have had over 20 cycles of chemo and they say that is more than most receive, but more than 30 radiation treatments... wow, that blows me away. Getting poisoned every 2 weeks doesn't seem so bad compared to that.

But it's in the brain, so it's not that big of a deal.

My brother had a glioblastoma for 6 years. For him radiation gave him his life back. It's too bad it was limited cause nothing else killed that tumor like radiation did.

Now, his hairline went straight to Dr Phil, but that allowed him to embrace CP's favorite look I guess...

Keep fighting guys, there's a lot of us cheering you on!

Not sure if serious... :hmmm: