Agree, this x millions, You are fighting this head on, just as my Dad did back in 1969. Becoming a human guinea pig all in the name of science .

THANK YOU!

I would prefer the other clinical trial since it involves immunotherapy, which from things I have read, seems very promising. No one has to cut on me and root around inside of my torso, so that is a huge plus. My doc also said if the clinical trial doesn't help me, we can go back to the chemo I was on in the first place which did give me great results. The second chemo I was on is what stopped working so I am not getting that anymore, and one benefit of that is the hideous rash I have will finally go away. My chest and stomach look like I have a bad case of chicken pox and I have red bumps on my arms and legs, patches of dry red skin all around my face as well as red bumps on my throat and neck. Another benefit is those treatments that stopped working were billed at over 46 grand every time. Even though I have Blue Cross and Blue Shield, seeing those outrageous numbers is why I got some little supplemental insurance for heart conditions. :eek:

$46k, and it wasn't working?? Wow...

Keep up the good fight, Ed.

Keep fighting, Ed.

I wish I had something inspirational to say, or some comfort to give, but I'm afraid it would ring hollow.

Just know that I'm praying and thinking of you. You really are an inspiration.

This is an amazing post and there is not much I can add. I just want to say that I appreciate you sharing this journey with us as well. I have been very fortunate and not had anyone close to me impacted by cancer so this has been an interesting view into just how bad it can be while also showing how strong and resilient humans can be. So, thank you for sharing with us and allowing us the opportunity to provide support as best we can.

This is for you, Ed. Gonzo made a good point about the benefit your data point could be to the future of cancer research, but this is your time now and that's more important than one data point. Decide what you want and don't let cliches about fighting the good fight convince you to do what you don't want to do. Live the rest of your life your way, whichever way that is.

Here's a powerful article about end of life issues. It's been posted here before so you may have already read it. But if not, here you go:

How Doctors Die

It did work up until the last two treatments. I was on it since mid-September.

Have considered something more...holistic??

A lot of new information coming about CBD and THC oils and tinctures used in the treatment of cancer. Not symptons...but the actual cancer itself.

Come on. The idea that pot somehow cures cancer is a pipe dream.

Shit, not only is an efficient fuel and fiber source, but it wouldn't surprise me if it's illegal BECAUSE this cheap, efficient plant could replace $46k per trip chemo treatments...


But this isn't the thread for that particular discussion. This is Ed's thread. I just asked a question, that's all.

Idiot

^ Don't bring that shit in here guys, of all places.

Keep fighting, Ed. I've been following your thread since you were diagnosed and you really are an inspiration and tougher than I'll ever be. God bless.

I can not agree more with patteeu!! Ed, you're a champ, no matter what happens and when the time comes.......hopefully later than sooner....you will be missed.

I was at the Black Sabbath concert and I got a lot of THC second hand that night! There were many clouds floating around of that stuff.

Thank you very much. It's overwhelming hearing all that from you all, but not in the get away from me kind of overwhelming. One of the nurses, one who usually jabs the needles in my chest, told me I was the greatest man she has ever met. I was taken by surprise by that and I really didn't know what to say so I just blinked and said, "Me?" She said something about how I am facing cancer compared to the others she sees. I was beyond humbled and really couldn't say much to her other than to say thanks and I appreciated that very much. Whenever I die, I won't be made a saint, and not just because I am a Lutheran. Maybe part of my strength comes from being bullied and pushed around a lot when I was a child. Cancer is very much like a big nasty bully, too. Now I can fight back, and bullies piss me off to no end. I have had my fill of excrement sammich in this life. Now, if someone or something comes and tells me I have to take a bite, it's going to be a fight.