Quote:
Originally Posted by JOhn
I understand, anything is worth the expense. They both have a rare genetic disorder called peridoxyine (B-6)dependent seizures. Unfortunately my daughter suffered a 50+ hr seizure before they were able to control it & treat i. She had a sever stroke & damage. She does say "mama" once in while. She lives with a FT Respite provider since I'm a single parent now and unable to do it myself. Luckily my son only has mild ADHD and speech delay because of it.
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our daughter has polymicrogyria it affects the output side of her brain. it's too many and too small of folds in her brain, she also has numerous other disabilities. feeding tube, cath, etc... we also have nurses who take care of her while we work daily. she also suffers from constant non-clinical seizures