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Have a HS classmate dying of the same thing. It's maddening and humbling. But he has a great sense of humor about it and he demands that he's not treated differently so I crack jokes about wanting to take him to an amusement park so we all get head of the line privs. It really depends on the person, I think. I don't think he has another year in him because he's opted not to some of those life extending things that give you a couple extra years but your quality of life is zero.
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