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Old 01-08-2013, 08:43 PM  
'Hamas' Jenkins 'Hamas' Jenkins is offline
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The Requested Life Update

Initial thread:

http://www.chiefsplanet.com/BB/showthread.php?t=247772

The only way to properly begin this post is a sincere offering of gratitude for everyone that expressed care and concern for our girls. Iím amazed at the level of interest and support shown by the posters on this site. When people like Phobia and htismaqe say this place is a community, those arenít empty words.

First, a PSA: When you take infant twins out in public itís like being an F-list celebrity. Every sixth person you walk by in the mall or at the store says, ďOh look, twins!!Ē which is nice at first, but becomes increasingly annoying in the subsequent weeks and months. Yes, those are twins. Believe it or not, I can hear as well, which makes such passing comments a mixture of humorous, odd, refreshing, and irritating.

Additionally, if you say you want twins you also need to realize the work involved with juggling two babies at once, especially during diaper changes and baths. Itís not a summative, itís exponential, especially if you are at home by yourself and one or both of them has had a blowout. Thatís not to say itís not worthwhile, but it is ****ing exhausting.

With that grievance aired, Iíll move on to the meat of this post: an update on how the girls are doing.

Hailey first. As Iím sure a lot of you remember, she had a significantly rougher initial course. Most of the important stuff is already mentioned within this thread, so Iíll update you on what has happened since.
She finally got past her issues with retinopathy, but as a result of the laser surgery sheís nearsighted. For a while her physical therapist thought she might also cognitive visual impairment (Google it if interested), but her vision in all fields and ability to pick out colors and respond to lights and shapes has tested out as perfectly normal. That said, she does need glasses to see optimally, and although she usually wears them pretty well, there are times when sheís done with it and just rips them off, chucks them, or tries to eat the plastic ear socks.

She also needed surgery around the musculature of her eyes to make sure that they both aligned properly. She had an initial procedure done in mid October. Itís likely that sheíll have another done this spring for a precise touch up and centering.

Fortunately, she eats well, feeds herself completely, drinks from straws and sippie cups, she does extremely well making sounds, imitating our sounds, communicating in general, and she even knows some sign language. Itís hard to pinpoint a childís cognitive development at such a young age, but my wife and I, as well as her therapists, are very pleased with her cognitive function.

The area where Hailey lags behind the greatest is gross motor function. This is a result of the hypoxic environment that necessitated her delivery. As a result of the initial brain trauma to her ventricles, she displays textbook signs of spastic diplegia, the most common form of Cerebral Palsy. Because of this sheís behind her sister in movement and ambulation. She can crawl, but itís not as graceful. Merely sitting in a proper position has required a great deal of therapy and effort. However, our PT, who is among the most dedicated and wonderful people to ever grace the Earth, is confident that she will be able to walk, albeit with some type of assistance. What type, we donít currently know.

As a result of her therapy we are the temporary owners of the worldís smallest treadmill, one designed for toddlers. Itís about two feet long and has a rotary dial of speeds ranging from 0.1-0.5 meters/second. We use it during therapy to help her learn the proper gait pattern and weight shifting, as the tendency with people who have CP is to walk with a scissors gait, AKA pigeon-toed and on their tiptoes.

In addition to PT, which she has three times per week for an hour each, and occupational therapy, which she has two times a month for an hour, we give her a synthetic compound called Baclofen. Itís easiest to think of it as an artificial amino acid. Most individuals with CP are not able to absorb a specific amino acid called GABA; Baclofen is a synthetic version with a specific marker that allows their nerves to recognize it, which improves muscle coordination and function.

When considering Haileyís issue with muscle tone, it helps me to think of driving over a bridge with a metal frame spanning above the road surface. If youíve ever done so while listening to AM radio youíre familiar with reception loss. Thatís the closest analogue I can think of for her injury. Itís not that she canít send the signal to move and itís not that her muscles are completely incapable of receiving the message, but there is a great deal of interference in the chain which precludes efficient communication.
However, considering where she started, sheís made phenomenal progress. I donít like to use words like ďnormalĒ for a variety of reasons; my greatest hope for her is that she is able to lead an independent life and that she can do what she wants. Although I realize that sheíll never be an Olympic sprinter, I am a mixture of hopeful, confident, and highly anxious that she will be able to gain that independence that we so want her to have.

Moving on: Logan is a toddler. Sheís wild, crazy, hilarious, and oftentimes bizarre. She has a maniacal laugh that is a mixture of Woody Woodpecker and Elmer Fudd that she unleashes at random moments. Sheís a born climber, and has managed to figure out how to climb on to our coach by using the ottoman as a staging ground. Sheís obsessed with small electronics like our remote control, but fortunately she doesnít really care to watch television, but she does love to empty my DVD shelf, spilling dozens of cases on the floor. For months her favorite toy was the USB dongle for my wired Xbox controller. If she was upset the ready salve was ďWhereís your dongle?Ē At that point, sheíd grab it and usually bash something. She also loves to read. Today I think my wife read her seven or eight Sandra Boykin (sp?)-esque books.

She and Hailey get along pretty well, although Logan occasionally conks her with a toy hammer or scratches her face, fear not because Hailey protects herself through a series of vicious bites. They play together more daily.

We donít have a lot to bitch about. Iíll be honest that I often have pangs of remorse, especially that Iím now at a stage of my life that many of my friends are having children in complication-free pregnancies, but spending as much time in the NICU as we did, and going to some of the reunions of children who have matriculated through, Iíve seen how bad the other side can be, from feeding tubes, to wheelchairs, to devastating brain injuries that will leave children unable to care for themselves or probably know where or who they are. It could have been so much worse. Iím not an optimistic person, but I do like to think of myself as pragmatic. Iím not hoping against hope for some type of panacea that will undo everything, nor am I deluded enough to think that Hailey and/or Logan wonít face developmental issues or teasing down the road, but I am happy and grateful for where they are at.

Iím also thankful for how many of you have shown interest and affection for two children youíve never met.

You have my enduring gratitude.

Now, some photos:

Hailey's Halloween Costume. She was Hailey Potter:




Logan was Hulk Logan:




From a Christmas Photo Session. Logan (L) Hailey (R)





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Old 01-09-2013, 12:38 AM   #61
'Hamas' Jenkins 'Hamas' Jenkins is offline
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Here's the good thing about having twins first: you don't know any other way. I was never around kids growing up, so my first experience with babies was having two of them. I think that having a single baby first then two might be tougher, simply because you are used to the experience of only having one.

Plus, we are very fortunate that they are good sleepers. Both sleep through the night. They go down about 9 at night and sleep right through. I have friends with kids who won't go down; I think I'd claw my eyes out if that happened.
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Old 01-09-2013, 12:41 AM   #62
Phobia Phobia is offline
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All my kids have always slept. The new son... 4-5 hours max, usually 3. He'll be 6 months in a couple weeks so hopefully that will change things.
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Old 01-09-2013, 02:58 AM   #63
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Congrats, Hamas! I'm glad your girls are doing so well. Beautiful pics!
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Old 01-09-2013, 03:03 AM   #64
DaneMcCloud DaneMcCloud is offline
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Quote:
Originally Posted by Phobia View Post
All my kids have always slept. The new son... 4-5 hours max, usually 3. He'll be 6 months in a couple weeks so hopefully that will change things.
I'm the Sleep Whisperer. My little girl wouldn't sleep more than 90 minutes, in the swing and not the crib, no less, when my wife's maternity leave was over.

Dad here had her sleeping in the crib on Day One of his watch. Six hours the first day, eight the next and so on. I've had her sleeping through the night since mid-November.

The key for her was the extremely loud white noise cranked through a Bose iPad station (same as we did for my older daughter) and a dark room. I watch her on a monitor during the day and evening (watching her right now) and if she cries, I take her out of the crib and "soothe" her by holding her in the rocking chair. After a few minutes, she's usually back to sleep.

Now that we have a pattern established, it's awesome, although it will definitely change. I've really enjoyed my two months with her (Dad's Paternity Leave) and will miss her when I begin working full-time again next month. But at least I'm fortunate enough to work at home.

Drop me a line if you'd like the White Noise file. I've extended it to five hours and have the iPod set to repeat.
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Old 01-09-2013, 03:07 AM   #65
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Great to hear that your kids have a great father...they are lucky.
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Old 01-09-2013, 08:22 AM   #66
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Great post. Glad things are going well, Welcome back.
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Old 01-09-2013, 08:38 AM   #67
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It sounds like you and your wife are incredible parents. Your kids are lucky to have you.
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Old 01-09-2013, 08:43 AM   #68
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Originally Posted by Mr_Tomahawk View Post
Some threads just make you smile when you read them.

Thank you.

Read through the post and got to the pictures.....didn't even realize I was smiling. lol.
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Old 01-09-2013, 08:44 AM   #69
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Congrats to heard the kids are doing well. It takes special people to deal with what you have been thru so far and what is to come.
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Old 01-09-2013, 08:46 AM   #70
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Beautiful kids. I love the bottom picture of them.
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Old 01-09-2013, 09:01 AM   #71
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Quote:
Originally Posted by 'Hamas' Jenkins View Post
Here's the good thing about having twins first: you don't know any other way. I was never around kids growing up, so my first experience with babies was having two of them. I think that having a single baby first then two might be tougher, simply because you are used to the experience of only having one.

Plus, we are very fortunate that they are good sleepers. Both sleep through the night. They go down about 9 at night and sleep right through. I have friends with kids who won't go down; I think I'd claw my eyes out if that happened.
this is all very true. my wife and i were both 18 when we had our twins. sometimes i feel that we all kinda grew up together.

to this day, when they get together w/their friends(they're 32) they are still both called "twin". it's been that way all their life. little bastards still call me on the phone and don't tell me who they are, trying to make me guess.

all the so called hassles, are very much worth it. makes you a much better person without you even knowing it.

best of luck hamas, and thanks for the update.
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Old 01-09-2013, 09:01 AM   #72
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Thanks for the update, great news!
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Old 01-09-2013, 09:56 AM   #73
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Mr Hamas....you brightened my day!

Thanks for the update....what cute little girls!

You should be proud!
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Old 01-09-2013, 10:36 AM   #74
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Cute kids


Your going have double the trouble when they become teens. Good luck with that.


I'd start now learning how to be a teen dad. HOLYSHITBALLS it's a challenge to have one..

I can't imagine having twin teen girls. Watch out for the manipulation they will pull on you.
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Old 01-09-2013, 10:52 AM   #75
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Hamas my son is now a year old but was born 3 months premature. He was 1lb4oz. My wife and I lived in the NICU for 3 months. I understand a lot of what you and yours have gone through. Happy to hear your family is growing and I wish you all continued best.
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