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Old 07-23-2024, 08:30 AM   #1
DaFace DaFace is offline
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Quote:
Originally Posted by seclark View Post
Doctor just left

I don’t have Parkinson’s

I have ALS

sec
Does this mean we get to throw a bucket of ice on you now? Maybe we can do it with a Gatorade cooler to make it seem more manly.

But obviously I know that's not a diagnosis you want to hear. All you can do is keep fighting like you have been. Hang in there.
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Old 07-23-2024, 08:50 AM   #2
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Originally Posted by seclark View Post
Doctor just left
I don’t have Parkinson’s
I have ALS
sec
Well, shit. This has to be about as devastating of news as you could have received. So sorry to hear. I've read there are some hopeful advancements in how to treat ALS. Praying those become real on a timeline that helps you ASAP.
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Old 07-22-2024, 04:55 PM   #3
ptlyon ptlyon is offline
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Shit bro so sorry 😢
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Old 07-22-2024, 05:42 PM   #4
Al Czervik Al Czervik is offline
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Thoughts and Prayers to Sec....Hang in there brother.
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Old 07-23-2024, 05:51 AM   #5
WilliamTheIrish WilliamTheIrish is offline
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Very sorry to hear that diagnosis sec. Stay positive. Stay around.
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Old 07-23-2024, 07:56 AM   #6
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seclark-

I'm very sorry to hear about your diagnosis; it sounds like you are incredibly blessed to have a loving support and caregiving circle around you. Do some research; there are a lot of resources available for folks with ALS and their caregivers. Caregivers will need support along with you on this journey.

Take care and God bless.

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Old 07-23-2024, 08:39 AM   #7
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I watched my mother in law suffer with ALS. My prayers are with you Sec.
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Old 07-23-2024, 08:52 AM   #8
IowaHawkeyeChief IowaHawkeyeChief is offline
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Sorry to hear the news. Sounds like you are blessed with a great family to get through this difficult time.
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Old 07-27-2024, 05:32 PM   #9
seclark seclark is offline
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They discharged me yesterday.
Got the best night of sleep I’ve had in a week. I was waking up at 2am every morning and couldn’t go back to sleep.
The wife is doing great working with the feeding tube, and I’m digging it with taking my meds instead of swallowing them.
The cancer has been put on the back burner, but I’m still going to my monthly doctors appointment but they’re not doing the treatments.
I’m going to monthly ALS clinic checkups, and am on 2 scripts. These don’t fix the disease but hopefully will slow it down.

I’m gaining strength back slowly because I haven’t been eating for so long and now I’m getting 6 meals a day through the tube.

I’m thankful for all the thoughts and prayers.

sec
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Old 07-27-2024, 05:36 PM   #10
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Quote:
Originally Posted by seclark View Post
They discharged me yesterday.
Got the best night of sleep I’ve had in a week. I was waking up at 2am every morning and couldn’t go back to sleep.
The wife is doing great working with the feeding tube, and I’m digging it with taking my meds instead of swallowing them.
The cancer has been put on the back burner, but I’m still going to my monthly doctors appointment but they’re not doing the treatments.
I’m going to monthly ALS clinic checkups, and am on 2 scripts. These don’t fix the disease but hopefully will slow it down.

I’m gaining strength back slowly because I haven’t been eating for so long and now I’m getting 6 meals a day through the tube.

I’m thankful for all the thoughts and prayers.

sec
Thanks for the update!
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Old 07-27-2024, 05:45 PM   #11
stevieray stevieray is offline
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Quote:
Originally Posted by seclark View Post
They discharged me yesterday.
Got the best night of sleep I’ve had in a week. I was waking up at 2am every morning and couldn’t go back to sleep.
The wife is doing great working with the feeding tube, and I’m digging it with taking my meds instead of swallowing them.
The cancer has been put on the back burner, but I’m still going to my monthly doctors appointment but they’re not doing the treatments.
I’m going to monthly ALS clinic checkups, and am on 2 scripts. These don’t fix the disease but hopefully will slow it down.

I’m gaining strength back slowly because I haven’t been eating for so long and now I’m getting 6 meals a day through the tube.

I’m thankful for all the thoughts and prayers.

sec
This makes me smile.
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Old 07-27-2024, 06:21 PM   #12
Al Czervik Al Czervik is offline
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Quote:
Originally Posted by seclark View Post
They discharged me yesterday.
Got the best night of sleep I’ve had in a week. I was waking up at 2am every morning and couldn’t go back to sleep.
The wife is doing great working with the feeding tube, and I’m digging it with taking my meds instead of swallowing them.
The cancer has been put on the back burner, but I’m still going to my monthly doctors appointment but they’re not doing the treatments.
I’m going to monthly ALS clinic checkups, and am on 2 scripts. These don’t fix the disease but hopefully will slow it down.

I’m gaining strength back slowly because I haven’t been eating for so long and now I’m getting 6 meals a day through the tube.

I’m thankful for all the thoughts and prayers.

sec
Stay strong brother!!!!
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Old 07-27-2024, 06:38 PM   #13
seclark seclark is offline
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One of my twins came by this afternoon and the wife showed him how to feed me through the tube.
He said that he mixed in 2 big tablespoons of mayonnaise in with the the nutrient, and I said “**** you, you’re not gonna get near my feeding tube again !”
I hate mayonnaise.
sec
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seclark is obviously part of the inner Circle.seclark is obviously part of the inner Circle.seclark is obviously part of the inner Circle.seclark is obviously part of the inner Circle.seclark is obviously part of the inner Circle.seclark is obviously part of the inner Circle.seclark is obviously part of the inner Circle.seclark is obviously part of the inner Circle.seclark is obviously part of the inner Circle.seclark is obviously part of the inner Circle.seclark is obviously part of the inner Circle.
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Old 07-27-2024, 06:57 PM   #14
cabletech94 cabletech94 is offline
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Quote:
Originally Posted by seclark View Post
One of my twins came by this afternoon and the wife showed him how to feed me through the tube.
He said that he mixed in 2 big tablespoons of mayonnaise in with the the nutrient, and I said “**** you, you’re not gonna get near my feeding tube again !”
I hate mayonnaise.
sec


Well said!! Hang in there brother!!! All of us are pulling for you!!!
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Old 07-27-2024, 05:35 PM   #15
ptlyon ptlyon is offline
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Keep it up bro! 🙏
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