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View Full Version : Life Well, I guess my life just got turned upside down


Hog's Gone Fishin
05-23-2018, 07:48 PM
Been married 33 years. My wife has had stomach issues for the last 12 years, constant bouts with throwing up and IBS . Last Monday and Tuesday a week ago her stomach pain got really severe.

Wednesday morning took her to a doctor to get checked out. White blood cell count was 22k where it should be 10k or less. They sent her straight to the emergency room for more testing and Cat scan.

Turns out she had a strangulated hernia which caused a blocked colon.

So emergency surgery commenced within about 3 hours last Wednesday the 16th. Surgery went better than expected, perfect in fact. After surgery she felt better than shes felt in 12 years. no more cigs ,she said she's done smoking (45) years and to throw her stash out.

Monday the 21st she was to be discharged around 9:30 am and I'm there waithing for the paperwork and we're in her room visiting with a friend that stopped in.

All of the sudden she stopped talking and her jaw was just quivering and she had this blank stare. I got the nurse in to look at her and everything seemed fine except she couldn't speak. After about 8 minutes she was able to speak again and everything seemed normal. This event happened 9 more times from then until 2:00 that afternoon as they kept her at the hospit for observation.

I had stayed with her all the time as I was worried, at 2:38 she started having another spell and then it turned into a full blown seizure. Now if you've never witnessed one, i'll tell you now ,you really dont want to.

her arm came out and made a tight fist and she just locked up and quit breathing .I was telling the nurse to get somebody now, right now. My wife, you could see every vein in her face and arms and she turned the darkest shade of purple you could imagine. Then she went limp . I yelled to the nurse, you need to call a code RIGHT NOW! She fell back ,as she had raised up during the seizure and was laying there blue. Like a corpse. Not breathing. I've got tears now as I type this.

About ten people rushed in at once. That damn code thingy gets you help fast. They told me to leave and I refused. They all did what they were trained to do and got her breathing again. probably within about 3 minutes.

another doctor came in and asked me to leave and I willingly did so as I was spent. I knelt in the hallway outside the room and cried. I had just witnessed my wife die.

but she wasn't dead.

They got her stabilized over the next couple hours ,awake and alert and ambulanced her to amarillo to a major trauma center.

So she's been there since Monday evening and has these episodes where she can't speak and lose function of her hands ,arms for 5-20 minutes out of every hour , sometimes three events per hour.

They don't have a diagnosis that they've shared with me. you can't get a straight answer from anybody ther, nurse can't tell you which doctor is due to come in or what time. the hospital is like the twilight zone and a bad nightmare combined.

Our only daughter is going through high school graduation ths week and it's been the big event on my wifes calendar for the last 6 months. She won't get to see it.

I have no idea if the doctors can fix this or if i'm bringing home a vegetable.

Our health care system SUCKS!

Sofa King
05-23-2018, 07:51 PM
Jesus man. I hope everything goes well and you get some answers.

Pablo
05-23-2018, 07:52 PM
That sounds brutal man. Hope you get some answers and she is on the path to recovery.

displacedinMN
05-23-2018, 07:53 PM
No words. Stay strong. Already said a few words and prayers.

88TG88
05-23-2018, 07:53 PM
Wow, stay strong bro

ChiefGator
05-23-2018, 07:54 PM
Damn man.. my heart goes out to you and yours...

Kman34
05-23-2018, 07:54 PM
So sorry this is happening to you....even though I don't know you I will say a prayer for your family for a positive outcome... I'm sure many others here will do the same... keep us posted . God Bless...

ptlyon
05-23-2018, 07:55 PM
So sorry hog. Prayers.

Mr. Kotter
05-23-2018, 07:56 PM
Holy crap, Hog...thoughts and prayers your way. Now. In a big, big way. No foolin', sir. Good vibes for a positive outcome.

SAUTO
05-23-2018, 07:58 PM
Oh my god. So sorry to hear man.

Prayers going out.

Bwana
05-23-2018, 07:58 PM
Wow sorry to hear that, all my best to your wife and family.

BigRedChief
05-23-2018, 07:59 PM
Sorry for your family. It’s a shit thing to have to go through.

Talk to her just like you would at any other time in your life. I’ve had many patients that seemed out of it but later would tell their family they don’t remember it all but remember their family talking to them and remember being reassured they weren’t alone.

And don’t let go of the hope that you will get your life back. Hope is powerful.

Marcellus
05-23-2018, 07:59 PM
Hang in there man! CP has some power in the prayer chain!

BryanBusby
05-23-2018, 08:01 PM
Jesus

Perineum Ripper
05-23-2018, 08:03 PM
So sorry to hear about that, I can’t imagine how difficult that is.

This might seem stupid but get a tablet, and if you go to the graduation, FaceTime or do the google version of it. (Hangtime or Hangouts) I know it’s not the same but at least she will get to see it

Hog's Gone Fishin
05-23-2018, 08:03 PM
Thank you all. You guys are great!

big nasty kcnut
05-23-2018, 08:04 PM
oh no prayers up!

Sassy Squatch
05-23-2018, 08:06 PM
Thoughts and prayers for your wife.

IowaHawkeyeChief
05-23-2018, 08:07 PM
prayers for you and your family Hog.

philfree
05-23-2018, 08:11 PM
God bless you all. Be strong.

Dartgod
05-23-2018, 08:15 PM
Prayers to you man, that's tough. I'm not sure how I could handle something like that.

Simply Red
05-23-2018, 08:16 PM
I will certainly include your family in my prayers tonight. I can't imagine what you're going through.

wazu
05-23-2018, 08:18 PM
What a brutal experience! Way to take care of her. Praying this ends well and she gets back to life without the ailments she had before the surgery. Hang in there man!

Hog's Gone Fishin
05-23-2018, 08:19 PM
Thanks again guys. CP is my happy place . i may go pull up the PMII /Denver game to make me feel better for awhile.

booger
05-23-2018, 08:21 PM
Holy shit dude that’s such a scary time with your wife and incredible pride for your daughter all at the same time wrapped up in what has to be a roller coster of emotions. I couldn’t handle it man. I pray for the health of your wife, the Drs and nurses guidance in caring for her and pray for comfort to your daughter and you, all of your family and loved ones. Now is the time to reach out and vent or lean on whoever you can, to call in any favors you need in real life just as you have done here on CP. Praying for you and yours bro!

Hog's Gone Fishin
05-23-2018, 08:22 PM
They say now the doctor that is the ONLY doctor able to read and interpret the EEG scan will be coming in at 1AM. I swear it's twilightzone/nightmare. It's almost laughable. The scan was taken Tuesday at 11:00 AM

Rain Man
05-23-2018, 08:23 PM
Oh, my. My best wishes to you and your wife. We're pulling for you.

CanadianChief
05-23-2018, 08:29 PM
Prayers to you and your family.

Iowanian
05-23-2018, 08:35 PM
Hang in there man. I'm thinking if you and your family.

Frazod
05-23-2018, 08:36 PM
Jesus, that's awful. My best to both of you, my friend. Hang in there.

Great Expectations
05-23-2018, 08:39 PM
Prayers to you and your family.

Bewbies
05-23-2018, 08:57 PM
My wife got diagnosed with diverticulitis a couple years ago, and went from thinking she was fine, to being rushed into the hospital, then they waited, then surgery, everything was good and then she crashed. Ended up having another, her lung collapsed, she spent a few days in ICU and tried to die.

She was 34, supposed to be something you get when you’re old. She’s fine today but the month we spent in the hospital was the most bass ackwards never ending nightmare I’d ever experienced. And a year before my brother’s brain tumor finally killed him after a 6 year run.

All that being said, the communication sucked, and living there was hell. But every one of those people helping her had spent years, and even decades preparing to do that exact work. All is well today, and I’m thankful she got the care she did. It just took awhile to get over how confusing it had been at the time.

Prayers for you and your family. What you’re going through now is awful, and I know there are a lot of folks here who sit in solidarity with you and want nothing more to see everything return to normal for you and for your wife to experience healing and recovery quickly.

SAUTO
05-23-2018, 09:03 PM
They say now the doctor that is the ONLY doctor able to read and interpret the EEG scan will be coming in at 1AM. I swear it's twilightzone/nightmare. It's almost laughable. The scan was taken Tuesday at 11:00 AM

I would be losing my mind.

EWOK
05-23-2018, 09:09 PM
Prayers sent

lewdog
05-23-2018, 09:10 PM
Hoping for all good news and the best for you both man.

Stay strong and keep on hounding those nurses and doctors.

Pitt Gorilla
05-23-2018, 09:13 PM
That’s terrible. Good look to you all.

IA_Chiefs_fan
05-23-2018, 09:13 PM
I can't imagine what you guys are going through. I'm truly sorry and I'll try to send good vibes your way. I'll also give my wife an extra big hug tonight.

vailpass
05-23-2018, 09:13 PM
Here’s to your tomorrow being better than your today. Stay up.

ThaVirus
05-23-2018, 09:14 PM
Sorry to hear it, man.

Keep us posted.

Cornstock
05-23-2018, 09:16 PM
Positive thoughts coming your way

Shaid
05-23-2018, 09:16 PM
Prayers sent man. I'm not a doctor but with the surgery having nothing to do with her brain, I'd guess a chemical imbalance or reaction to the medication following the surgery may be to blame. If nothing else, see if they can get her on some alternate medication but that'd be something to discuss with the doctor of course. Can't believe they are making you wait until 1am when she is having active seizures. I'd be fuming.

Rukdafaidas
05-23-2018, 09:25 PM
Prayers for you and the wife.

DaFace
05-23-2018, 09:25 PM
Damn man, that's awful. Hopefully it's a problem they can find, and she'll eventually be fine. Sending good thoughts your direction.

TrebMaxx
05-23-2018, 09:26 PM
Stay strong brother! Prayers for your family.

mnchiefsguy
05-23-2018, 09:28 PM
Thoughts and prayers.

EPodolak
05-23-2018, 09:30 PM
My thoughts are with you and your family Hog.

Ming the Merciless
05-23-2018, 09:42 PM
Shit dude...i cant even imagine how scared i would be if my wife was that sick...
Uggh...

And not knowing...

Big hug to you, man

Gravedigger
05-23-2018, 09:43 PM
My father had some similar issues after he had a stroke overnight that took his ability to walk, talk, and eventually keep his own trachea open so he could breathe. We took him to the Neuro ICU at St Luke's on the Plaza. They were on their shit there and took amazing care of him. After he left there, the strokes that he'd suffered eventually took him causing heart failure at the rehab place they sent him to up North.

The stroke froze my Dad to where he couldn't breathe because his brain wouldn't allow him to keep his airway open, so they had to stick an oxygen tube down his throat and eventually he had a trache tube surgically placed into his throat when he came to.

Are they sure it isn't a stroke? My Dad had one while he was sleeping and just felt like shit the next day. The bad thing about strokes is that you only have a short 3-4 hour window where they can give the patient something to stop the clotting. Since it happened to him in his sleep he missed that window, as I would imagine many do. Ask them how her Vertibrial and other arteries are in her neck and head.

I feel for you, nobody should ever have to witness that, and like you it happened when I was in the room and I had to get help quickly because he was a non-responsive vegetable. I pray that she recovers and this is just a warning sign.

Indian Chief
05-23-2018, 09:50 PM
I can't even imagine being in your shoes. I'm hoping for the best for you and your wife.

Stay strong man.

Buehler445
05-23-2018, 09:51 PM
Jesus man. That is abysmally terrible. I’d have lost my shit days ago.

If you need anything, at all, you know how to get ahold of me.

My best, friend.

Eleazar
05-23-2018, 09:56 PM
Man, so sorry you are going through this. You are one of my favorite people here and never fail to make me laugh. I hope that your wife makes a full recovery soon.

Dante84
05-23-2018, 10:01 PM
Hope you get some good news soon!

Hog's Gone Fishin
05-23-2018, 10:01 PM
Once again , thank you all.!

O.city
05-23-2018, 10:06 PM
Damn man. Keeping you guys in our thoughts.

mlyonsd
05-23-2018, 10:08 PM
Good God HF, prayers and thoughts your wife's way. And you. Hopefully they get to the bottom of it. I'm sure they will.

Pants
05-23-2018, 10:11 PM
Prayers and thoughts for you and your wife, Hog.

I hope they can diagnose the issue and treat your wife to full recovery.

patteeu
05-23-2018, 10:15 PM
That's rough. Good luck and best wishes.

The Franchise
05-23-2018, 10:19 PM
Hope she pulls through, man.

Eureka
05-23-2018, 10:25 PM
Jeeez didn’t you just retire? And now this! Hope your wife recovers completely.

kccrow
05-23-2018, 10:32 PM
My prayers and thoughts are with you, your wife, and daughter Hog. God Bless and I hope all works out. Stay strong bud.

Hopefully, they figure it out. Not sure if they asked her to fast pre-op, but it's not uncommon to have a seizure due to hypoglycemia post-operatively (esp. if opioids are introduced) and I have to wonder if they do have her levels under control in that regard... You just never know in some hospitals... She may very well have also had a CVA (stroke)... Interesting they haven't found some evidence yet given the time frame. They should be able to tell within 48 hrs.

CaliforniaChief
05-23-2018, 10:37 PM
I will pray for your wife's total healing and for peace for you in this time. I can't even begin to imagine what this has been like for all of you.

I'm really sorry to see this!

RippedmyFlesh
05-23-2018, 10:47 PM
Just don't know what to say but I pray for you and yours. You are a strong man Hog they prob would have to have admitted me if I went through what you did hang in there.

thabear04
05-23-2018, 10:53 PM
Sorry to hear this horrible news. Prayers are with you at this time.

BucEyedPea
05-23-2018, 10:54 PM
I am sad to hear that about your wife Hog and for your daughter's who is also going to miss her mom at her graduation.

threebag
05-23-2018, 10:56 PM
Prayers for your wife and family.

New World Order
05-23-2018, 11:03 PM
Wow Hog, so sorry to hear man.

Thoughts and prayers brother

pugsnotdrugs19
05-23-2018, 11:15 PM
Tough read. Hope all turns out well for you guys.

TimBone
05-23-2018, 11:26 PM
That's a hell of a lot more than I could handle. Thoughts and prayers to you and your family right now.

Chiefs=Champions
05-24-2018, 12:00 AM
Cant imagine dealing with this. Thoughts your way. Hang in there

TimeForWasp
05-24-2018, 12:26 AM
Praying for this all to work out on the positive.

TwistedChief
05-24-2018, 02:17 AM
Sending infinite amounts of hope and good vibes your way, sir.

ottawa_chiefs_fan
05-24-2018, 04:46 AM
thinking of you - just horrible thing to witness - will give my wife an extra hug this AM - please try to keep us updated on things if u can...

Mile High Mania
05-24-2018, 04:53 AM
That’s terrible news... praying for your wife, you and your daughter. I can’t imagine the stress or the feelings your daughter is experiencing.

Msmith
05-24-2018, 04:56 AM
Pray for your family.

ChiTown
05-24-2018, 05:47 AM
I truly believe in power of prayer. You have my positive thoughts and prayers for a full recovery for your wife. We’re here for you, Brother.

wheeler08
05-24-2018, 05:51 AM
Man I teared up just reading it. Will keep your family in our thoughts and prayers.

Toad
05-24-2018, 06:01 AM
Hog, Prayers to you and your family for a quick and total recovery.

srvy
05-24-2018, 06:04 AM
Prayers your way. It can be complete crazy trying to get answers in a hospital but trust me when I tell you its better to get the correct answer than a wrong one in this case. I hope the remedy is soon to be revealed and your wife you and family are back to some normalcy soon.

Stay strong Hog

Molitoth
05-24-2018, 06:21 AM
=(

digger
05-24-2018, 07:26 AM
Hang in there.

Sent from my SM-G960U using Tapatalk

KS Smitty
05-24-2018, 07:27 AM
Stay strong Hog, what an awful situation. Sending prayers and good thoughts your way.

Lzen
05-24-2018, 07:36 AM
OMG, that is terrible. I'm sorry you have to go through this, Hog. May God give you peace and strength to get through this and may He bring healing to your wife.

Amnorix
05-24-2018, 07:46 AM
Wow, that is completely awful. Absolutely best wishes for a complete and speedy recovery!

Graystoke
05-24-2018, 07:53 AM
Sorry to hear this. Prayers sent

lawrenceRaider
05-24-2018, 08:02 AM
Prayers out your way man. Praying for the best result.

Halfcan
05-24-2018, 08:29 AM
Best wishes to you and your family.

Hangin'WithMahomes
05-24-2018, 08:59 AM
Thoughts and prayers for her and your family.

raybec 4
05-24-2018, 09:13 AM
Holy shit man, hang tough in these terrible times.

Bowser
05-24-2018, 09:21 AM
Damn, that's rough. Hang in there, Hog. Hope all this good juju is helping.

RickObie
05-24-2018, 09:22 AM
Ditto what others have said - thoughts and prayers for you and your family!!

frozenchief
05-24-2018, 09:29 AM
I don’t even have words. My thoughts and prayers are with you and your family. Keep us posted.

Hydrae
05-24-2018, 09:39 AM
About 10 years ago my wife had viral pneumonia and had to be put into a medically induced coma for almost a week. That was by far the longest week of my life. I felt so helpless. I wanted to help her but there was nothing I could do but sit and watch. Talked to her, held her hand, all that. But it still scares me all these years later (she fully recovered and all is well thankfully).

My wish for you is some peace and maybe a way to not worry so much. It is hard (maybe even impossible) but you have to let the professionals do what they are trained to do. Just keep in mind that even when this is over your wife will still need a lot of support so you have to keep yourself in good shape (eating and sleeping regularly!) to be able to provide that support. It is hard to remember but your health right now is almost as important as hers.

Dayze
05-24-2018, 09:44 AM
damn man. I'm sorry to hear that.
I hope everything turns out ok for you guys man.

ModSocks
05-24-2018, 09:48 AM
That was difficult to read. I hope she's ok and everything turns out well. Best wishes man. Sincerely.

KC Dan
05-24-2018, 09:54 AM
Wow... I'm so sorry to read this. I really hope for the best for you and your family. Prayers for her quick recovery.

King_Chief_Fan
05-24-2018, 10:16 AM
Very sorry to hear this.

Will add her and you to my prayer list.

OmahaChief
05-24-2018, 10:33 AM
Wishing a speedy recovery to your wife and peace for you and your family. Sorry to hear you are going through this.

mikeyis4dcats.
05-24-2018, 11:05 AM
Man, sorry to hear that. Sometimes simple things take swift turns. My sister went in for a gallbladder removal and vomited when they removed the tube after surgery and aspirated into her lungs. She was touch and go and docs said prepare for the worst. Lucky for us she recovered. Modern medicine is amazing, but there is still a lot we don't know and take for granted.

Chief Roundup
05-24-2018, 11:12 AM
Damn what an awful turn of events. Stay strong and dont lose hope. She has got this. Prayers for you and your family!

Sent from my SM-S906L using Tapatalk

KCwolf
05-24-2018, 11:21 AM
So sorry to read this .... Wishing you and your family well in this tough time

Lex Luthor
05-24-2018, 11:35 AM
I'm very sorry to read this. I hope things turn out OK for you both.

ChiefGator
05-24-2018, 12:15 PM
Popping back in to see if you got an update yet, Hog.

Fingers crossed... damn hard to type with all my fingers crossed like this.

JohnnyV13
05-24-2018, 12:42 PM
Hog farmer, I am not a physician, but I am the son of one and have hung around medicine all my life.

The whole thing that one doctor can read the EEG sounds strange to me. It's also strange that the guy can't come in until 1 am. What doctor typically works at 1 am? I suspect the EEG is weird and his current doctors can't interpret it, so they're calling in a neurologist who is particularly good at diagnosing seizures.

The doctors likely suspect SOMETHING, but don't want to speculate because they think it will freak you out. Probably that expert will look at the EEGs right before the seizure episodes and try to divine what's causing the seizures.

Go ahead and ask the doctors what they suspect is going on. Ask them who is this doctor they are calling in and what is he particularly good at? Why are they bringing him into the case?

Many years ago, my father went through a medical crisis that came within an eyelash of killing him. Because the doctors treating him were all his friends and colleagues, they included him in their diagnosis pow wows (he was trying to help diagnose himself).

Since the doctors knew my family was medical, and most of them knew us socially, they'd have these brainstorm sessions in front of us in my Dad's hospital room. My sister and I both have graduate training in biology, so we could follow what they were saying better than most non physicians could.

One issue was that my Dad's perceptions were off. He'd tell his doctors how much he was eating, when he was eating practically nothing because trying to get food down was such an ordeal for him. The problem was that my Dad sounded credible because he spoke fluent "doctor", despite being severely ill. My sister and I started to emphatically shake our heads when he was giving inaccurate information.

The bottom line is DO have you or a another family member with your wife at all times. Observe her and report any symptoms you notice to her doctors. You will spend more time with your wife than any of the medical professionals and might observe something that will help make what is obviously a tough diagnosis.

At one point, my father was discharged and came home. He was still having issues and one of his doctors made a house call. This physician was a high school classmate of mine and saw my father as his mentor in medical practice. My father insisted he didn't want to go back to the hospital, and he wanted to "die at home" if he was going to die.

About an hour later he went incoherent. My Mom and I insisted that the doctor go against my Dad's request and readmit him, because looking at him his face had that sunken look that starving people have.

At one point I told this former high school classmate of mine that "we're all used to listening to him. He sounds like he's making sense, but he's sick and he's not thinking straight." The doctor readmitted him and listened to our observation. He finds that my Dad's colon had shut down due to an infection and wasn't absorbing food. That problem became critical very quickly because my father is a small Asian man (5'1" 110 lbs). He didn't have much body mass to break down before he was starving.

They put him on total patient nutrition and then an infectious disease specialist performed a juggling act treating two concurrent infections where treating one infection tended to promote the other.

The bottom line of this story is getting involved with your wife's treatment and observing what is going on can make a big difference. This crisis happened 18 years ago. Today, my Dad is 94.

scho63
05-24-2018, 03:48 PM
I hope and pray for her. What a strange and scary twist this took. I hope during the operation they didn't allow something to get infected.

jallmon
05-24-2018, 04:11 PM
Prayers, Hog, to you and your family. Hope your daughter's graduation goes well, that your wife recovers quickly and fully, and that you all can put this behind you.

ReynardMuldrake
05-24-2018, 04:35 PM
That was hard to read. Hope you get some good news soon.

BlackHelicopters
05-24-2018, 04:39 PM
You say the health care system sucks, but it did save your wife’s life. How about some gratitude?

ModSocks
05-24-2018, 04:51 PM
Hopefully the next update is that Hog and his wife are back home, stable. Damn man, we're all pullin' for her, Hog.

ModSocks
05-24-2018, 04:52 PM
You say the health care system sucks, but it did save your wife’s life. How about some gratitude?

Is it really the time for that bullshit? C'mon man. Delete your post and I'll delete my reply and we'll just pretend you didn't have a momentary lapse of stupidity.

kc rush
05-24-2018, 04:53 PM
So sorry to hear this Hog. Prayers for your wife and your family.

OKchiefs
05-24-2018, 05:30 PM
You say the health care system sucks, but it did save your wife’s life. How about some gratitude?

Now's not the time, have some compassion and don't be an ass.

HemiEd
05-24-2018, 06:21 PM
Sorry to see this Hog, prayers to your wife, you and your entire family.

Frazod
05-24-2018, 06:34 PM
Man, I wish Hog would give us an update.

Chief Pote
05-24-2018, 07:11 PM
You say the health care system sucks, but it did save your wife’s life. How about some gratitude?

I usually just read and limit my comments, but you are an asshole.

Chief Pote
05-24-2018, 07:12 PM
Hog, Prayers for a speedy recovery, hang in there.

Dante84
05-24-2018, 07:14 PM
I'm a piece of shit

FYP, asshole.

Hog's Gone Fishin
05-24-2018, 07:36 PM
Man, I wish Hog would give us an update.

Just got a minute here . Finally got to visit with a doctor I could hardly understand.(Are there any American doctors anymore ?) They say she is having a Focal seizure which means its located in one hemisphere. In my time with her now it seems to be continuous rather than intermittent. She speaks jibberish fluently and I have a hard time deciphering what she's trying to tell me. She's also losing her awareness slowly.

I would definitely say she is worse today than she was yesterday.

They are moving her to the Hospital next door because its"IN MY NETWORK"
which I'm told is a much better hospital and also where my daughter was born.

Next step is an MRI. Which should have been done 3 days ago but well I guess they are busy, even though 75 % of the beds are empty. They said it will get done tonight or tomorrow. Kinda like whenever they get around to it.

In my internet research the focal seizure can manifest to other parts of the brain, I don't know if it can be stopped or not ???

I told the doctor that after giving thought she came out of surgery and said she had no desire or craving for a cig. She's had other surgerys (2) and felt the need for a cig immediately afterward.

so does that mean there's a possibility the anasthesia was too strong and caused brain damage. He said the stress from surgery can trigger seizures.

I don't know, not looking for a law suit by any means but just would like to know why!! If you know the cause it should make it easier to fix.

High school graduation for my daughter is tomorrow . I've made 9 trips to amarillo (an hour away) in 3 days trying to stay with her and keep my daughter on schedule at school which is all screwed up this last week.

Uggh


Thank you all again for your thoughts and prayers. I was able to tell my wife she had over a hundred prayers sent her way from people all over the world through the power of CP. she managed a smile.

Hog's Gone Fishin
05-24-2018, 07:43 PM
You say the health care system sucks, but it did save your wife’s life. How about some gratitude?

heh, No I'm right , the system sucks but the people in my hometown hospital that rushed to her side surely saved her.

as soon as she was sent to a major hospital she became a number instead of an individual. a perfect example is her haveing to be moved to ANOTHER hospital tonight becase of insurance so again the continuity of a 1 on 1 doctor relationship is broken again.

DaFace
05-24-2018, 07:48 PM
Just for the record, he's booted from the thread.

Moving on...

splatbass
05-24-2018, 08:15 PM
Prayers sent.

Fish
05-24-2018, 08:31 PM
Man, very sorry to hear, Mr. Hog Farmer (Retired). I really cannot imagine what a terrible feeling that must be. Best wishes for you and your family.

jdubya
05-24-2018, 08:40 PM
I`m so sorry Hog.....you all are in my prayers. Keep on keeping on

mlyonsd
05-24-2018, 08:45 PM
More prayers sent your family's way you get good news after the MRI.

Perineum Ripper
05-24-2018, 09:21 PM
Hate you have to move her again, fuck insurance companies. I am happy to hear it is a better hospital. I will keep your family in my thoughts, and if there is anything I can do just let me know

tooge
05-24-2018, 09:52 PM
Damn, so sorry to hear Hog. Almost sounds like a series of strokes and stroke induced seizures. Prayers for you guys. Keep positive

Fat Elvis
05-24-2018, 10:30 PM
Since you apparently live in TX, you might want to check into the Brain Injury Waiver for your wife. Waivers are for Home and Community Based Services (HCBS) that might help your wife on the road to recovery once she is discharged. While I can't be certain because I really don't know the Medicaid waivers in your state, it does look like seizure disorders are included in covered care under the TX Brain Injury Waiver. Talk to a social worker or case manager at the hospital where your wife is at about it.

Good luck.

Fat E

Chief Roundup
05-24-2018, 10:52 PM
You say the health care system sucks, but it did save your wife’s life. How about some gratitude?

You are one selfish fucking piece of shit. If you can't see that the system is broken and has done immense harm in this situation, which is not isolated, then you are more stupid than your fucking comment. Our heath care system does suck. Especially when people become numbers instead of people/individuals. Saving lives is great, but saving personalities and having relationships with patients that make us individuals within a society is what healthcare should truly be about.
God what an insensitive prick!!!!!!!!!!!!

Simply Red
05-24-2018, 10:56 PM
You are one selfish ****ing piece of shit. If you can't see that the system is broken and has done immense harm in this situation, which is not isolated, then you are more stupid than your ****ing comment. Our heath care system does suck. Especially when people become numbers instead of people/individuals. Saving lives is great, but saving personalities and having relationships with patients that make us individuals within a society is what healthcare should truly be about.
God what an insensitive prick!!!!!!!!!!!!

i didn't get that either - He's not normally like that. Not sure where that comment came from or its motivation.

LiveSteam
05-24-2018, 11:37 PM
Im so sorry.. Prayers and God's speed to a full recovery.

REDHOTGTO
05-25-2018, 02:29 AM
So sorry about this man, I sure hope she can get healed up soon, keep us up to date buddy,take care man

rico
05-25-2018, 02:35 AM
Sorry to hear, man.

The Bad Guy
05-25-2018, 04:42 AM
Best of luck to your wife. Stay strong. I'm hoping you both get the answers you need soon so she can be on the road to recovery.

'Hamas' Jenkins
05-25-2018, 06:17 AM
Just got a minute here . Finally got to visit with a doctor I could hardly understand.(Are there any American doctors anymore ?) They say she is having a Focal seizure which means its located in one hemisphere. In my time with her now it seems to be continuous rather than intermittent. She speaks jibberish fluently and I have a hard time deciphering what she's trying to tell me. She's also losing her awareness slowly.

I would definitely say she is worse today than she was yesterday.

They are moving her to the Hospital next door because its"IN MY NETWORK"
which I'm told is a much better hospital and also where my daughter was born.

Next step is an MRI. Which should have been done 3 days ago but well I guess they are busy, even though 75 % of the beds are empty. They said it will get done tonight or tomorrow. Kinda like whenever they get around to it.

In my internet research the focal seizure can manifest to other parts of the brain, I don't know if it can be stopped or not ???

I told the doctor that after giving thought she came out of surgery and said she had no desire or craving for a cig. She's had other surgerys (2) and felt the need for a cig immediately afterward.

so does that mean there's a possibility the anasthesia was too strong and caused brain damage. He said the stress from surgery can trigger seizures.

I don't know, not looking for a law suit by any means but just would like to know why!! If you know the cause it should make it easier to fix.

High school graduation for my daughter is tomorrow . I've made 9 trips to amarillo (an hour away) in 3 days trying to stay with her and keep my daughter on schedule at school which is all screwed up this last week.

Uggh


Thank you all again for your thoughts and prayers. I was able to tell my wife she had over a hundred prayers sent her way from people all over the world through the power of CP. she managed a smile.

HF:

First, don't take this as prescriptive medical advice, but some things that you can potentially look into further or ask your wife's providers about.

To answer some of your questions:

1) Yes, an MRI be done to rule out other potential causes of the seizure, given the later onset in life

2) Infection can cause seizures, and an elevated white count is a hallmark sign of infection, especially with a strangulated hernia and a bowel obstruction

3) When someone is in surgery their vitals are closely and constantly monitored. You can ask to speak to the anesthesiologist to see if any of her stats dropped during surgery, and if so, for how long.

4) A cerebrovascular accident can also cause a seizure. Given your wife's age and past smoking history, she would be at a higher risk for a stroke or what some people call mini-strokes. The proper term is a transient ischemic attack, or TIA. There are several other risk factors for CVAs, including high cholesterol levels and a history of diabetes.

5) Low blood glucose (or excessively high) can cause seizures. In hospital, practitioners are more worried about low glucose levels an will attempt to correct blood sugars quickly once they are below ~70.

6) There are several types of focal seizures: focal seizures with dyscognitive features (where they seem alert, but are speaking gibberish), focal seizures without dyscognitive features (where patients may notice a funny taste, tingling, or an aura), and focal seizures that progress to a full, bilateral seizure that affects both sides of the brain. From your description of her presentation, it is more likely (although by no means certain) that she is experiencing focal seizures with dyscognitive features that are progressing to full bilateral seizures (as you described in the OP). However, I would still press hard for the MRI results to see if there are any structural abnormalities in the brain.

7) Have they told you what medications they are using to treat her seizures?


I'm very sorry that you have to deal with this. Epilepsy is a bitch.

tmax63
05-25-2018, 07:08 AM
Thank you Mr. DaFace. You shoulda banned him for a month to teach him some manners or run him off. Prayers sent Mr. HF. Sounds like you're doing the best you can under the circumstances. Find time for a little food and sleep for yourself, you won't do your wife or daughter any good if you go 'til you drop and daughter has to take care of you.

CaliforniaChief
05-25-2018, 07:09 AM
Wow Hog...you're really stretched thin right now. That makes it even tougher to get clarity on your wife's situation.

Just remember you can only be one place at a time, and can only do one thing at a time. Praying that you are able to enjoy your daughter's graduation tomorrow, as tough as it is for your wife not to be there. Maybe see if someone can go with you who can get it on video so you can be free to just enjoy it.

Praying!!!

scho63
05-25-2018, 07:23 AM
Continued prayers and vigilance for your wife to make a speedy recovery.

This is another one of those difficult moments in life that puts things into perspective........

Hog's Gone Fishin
05-25-2018, 02:19 PM
Was with her all morning and she was able to speak fairly well for about an hour and then back to jibberish, she has lost her personality and talks in circles, maybe medication is causing that ?. shes at the new hospital which I like much better but it's like starting all over. The nurse shift just changed so she knew nothing ,said the doctor would come through some time this evening. No orders for an MRI when I left. The previous hospital was wanting one done soon.

Got home to get my daughter ready and the hospital calls on my home landline and asked for my wife , I said she's a patient there at your hospital. They said yeah we tried her room but someone was in there. I said well did you think she magically flew home from her room or what ? She said we need her insurance information. I said so your telling me the previous hospital didn't send it with her ?? No , we have no information.

It was the same way talking to the nurse. No information sent with her other than she was suffering from a seizure disorder. So I had to tell her the whole story. Geez!

Our health care system sucks!

ChiefGator
05-25-2018, 02:24 PM
Damn, that is brutal... Our health care system does move at the speed of an inefficient snail.

My ex was diagnosed with maybe cancer and it took her nine weeks to get the first test, and then several more weeks to hear back. All that time, she had no idea what the state of her own body was.

Good that she was able to speak fairly well for an hour.. that is a good sign, man!

bevischief
05-25-2018, 02:51 PM
Wow. Sorry to hear about this.

Frazod
05-25-2018, 03:32 PM
Was with her all morning and she was able to speak fairly well for about an hour and then back to jibberish, she has lost her personality and talks in circles, maybe medication is causing that ?. shes at the new hospital which I like much better but it's like starting all over. The nurse shift just changed so she knew nothing ,said the doctor would come through some time this evening. No orders for an MRI when I left. The previous hospital was wanting one done soon.

Got home to get my daughter ready and the hospital calls on my home landline and asked for my wife , I said she's a patient there at your hospital. They said yeah we tried her room but someone was in there. I said well did you think she magically flew home from her room or what ? She said we need her insurance information. I said so your telling me the previous hospital didn't send it with her ?? No , we have no information.

It was the same way talking to the nurse. No information sent with her other than she was suffering from a seizure disorder. So I had to tell her the whole story. Geez!

Our health care system sucks!

:shake:

Fuck. That's just inexcusable.

Hang in there.

ChiliConCarnage
05-25-2018, 03:38 PM
Really sorry to hear all of this Hog. Best wishes and I hope things get figured out at the new hospital.

Hog's Gone Fishin
05-25-2018, 08:03 PM
Thank you all again. Gradution was great, now I can stay with the wifey full time.

REDHOTGTO
05-25-2018, 08:05 PM
shes in our prayers buddy, hoping for the best man
has anethstisia ever messed her up before ? sorta sounds like a reaction to being put under, a friend had a bad reaction to having surgery and it got better after some therapy and time. hope this is all it is, good luck

Buehler445
05-25-2018, 09:40 PM
Was with her all morning and she was able to speak fairly well for about an hour and then back to jibberish, she has lost her personality and talks in circles, maybe medication is causing that ?. shes at the new hospital which I like much better but it's like starting all over. The nurse shift just changed so she knew nothing ,said the doctor would come through some time this evening. No orders for an MRI when I left. The previous hospital was wanting one done soon.

Got home to get my daughter ready and the hospital calls on my home landline and asked for my wife , I said she's a patient there at your hospital. They said yeah we tried her room but someone was in there. I said well did you think she magically flew home from her room or what ? She said we need her insurance information. I said so your telling me the previous hospital didn't send it with her ?? No , we have no information.

It was the same way talking to the nurse. No information sent with her other than she was suffering from a seizure disorder. So I had to tell her the whole story. Geez!

Our health care system sucks!

Right, so remember when I said if you need anything to call? I’m amending that to exclude taking a beating on behalf of a hospital that you inevitably want to dish out. :D.

Stay polite but insist on getting your wife the care she deserves.

jdubya
05-25-2018, 09:45 PM
Congrats on the graduation and give your daughter a hug from all of us. Prayers for you and your wife continues.....

Hog's Gone Fishin
05-25-2018, 09:56 PM
Damn, you guys are awesome!

Hog's Gone Fishin
05-25-2018, 09:59 PM
Still no MRI .still haven't talked to a doctor today. Pathetic!

Easy 6
05-25-2018, 10:02 PM
Its hard to even imagine what you're going through HF, such a drastic turn of events must be one helluva shock... all the best to you, hang in there

GloryDayz
05-25-2018, 10:02 PM
Praying for you. Stay strong...

Otter
05-25-2018, 10:08 PM
Wow Hog, I have really nothing to offer emotionally outside of stay strong.</br></br>If there's hope for recovery find the best hospital you can and keep your wife there because as you said it's a nightmare trying to get nurses and doctors communicate between shifts let alone hospitals. I've been thru similar and it's nervous breakdown kind of shit.</br></br>Stay strong.

kc rush
05-26-2018, 05:33 AM
Sorry to hear about the hospital situation. Continued prayers.

Buehler445
05-26-2018, 05:38 AM
Still no MRI .still haven't talked to a doctor today. Pathetic!

Make sure you talk to a nurse or the nurses station to know when the doctor makes rounds. Then you can be sure to be there and awake. Nothing worse than missing the fool because you were getting a coke.

Rasputin
05-26-2018, 06:24 AM
Prayers God speed

B_Ambuehl
05-26-2018, 07:06 AM
I told the doctor that after giving thought she came out of surgery and said she had no desire or craving for a cig. She's had other surgerys (2) and felt the need for a cig immediately afterward.

Is she still not having any craving for a cig? You said she smoked ~40 yrs, that's 40 yrs of chronic brain dopamine stimulation, then she quit all the sudden, and also took anesthetic meds, which all have a sedative effect (antagonizing effect on brain dopamine).

btlook1
05-26-2018, 07:17 AM
Good Luck, hope it works out!!

Fire Me Boy!
05-26-2018, 09:47 AM
Check with the patient advocate. You should be able to see a doctor any time you ask.

MarkDavis'Haircut
05-26-2018, 10:25 AM
You are in my prayers. God bless.

Buehler445
05-26-2018, 10:28 AM
Check with the patient advocate. You should be able to see a doctor any time you ask.

Really? I didn’t know this. I always thought you had to catch them
On the rounds.

'Hamas' Jenkins
05-26-2018, 10:31 AM
Is she still not having any craving for a cig? You said she smoked ~40 yrs, that's 40 yrs of chronic brain dopamine stimulation, then she quit all the sudden, and also took anesthetic meds, which all have a sedative effect (antagonizing effect on brain dopamine).

This is not true.

RINGLEADER
05-26-2018, 12:47 PM
It’s amazing how bad the support systems in the hospital is.

I had a surgery a couple years ago and a medical friend of mine said you can’t rely on the doctors and nurses and if you think something is off you must stand your ground.

I had nurses trying to inject things directly into my IV instead of diluting into the bag. Doctor assistants removing sutures that weren’t supposed to be taken out for a week, not putting the inflating leg things that prevent clots back on after I’d use the restroom. The older nurses seemed to be less careful than the younger ones.

It was nothing like your situation, but was a terrible experience.

Hog's Gone Fishin
05-26-2018, 04:34 PM
Had a good day today! Her seizures have stopped. We visited for about three hours with no hiccups, then she seemed worn down so Me and my daughter left

She's still not herself but much closer. I guess the med's are doing their job. Still get the same answer from the nurse, she can give me basics and no details as to what the diagnosis or thinking is and doesn't know when the doctor will come by.

MRI is scheduled to be done shortly. maybe answers afterward.

I guess the only way to see the doctor is to just stay in the room 24 hours.

I'm feeling better though.

DaFace
05-26-2018, 04:38 PM
Had a good day today! Her seizures have stopped. We visited for about three hours with no hiccups, then she seemed worn down so Me and my daughter left

She's still not herself but much closer. I guess the med's are doing their job. Still get the same answer from the nurse, she can give me basics and no details as to what the diagnosis or thinking is and doesn't know when the doctor will come by.

MRI is scheduled to be done shortly. maybe answers afterward.

I guess the only way to see the doctor is to just stay in the room 24 hours.

I'm feeling better though.Glad things are going a little better, man. Hang in there.

Hog's Gone Fishin
05-26-2018, 04:41 PM
Check with the patient advocate. You should be able to see a doctor any time you ask.

No , at least not the doctor that needs to be seen . You can put in a request and then wait for 8 hours for him to show up . It's all wrong!

patteeu
05-26-2018, 04:43 PM
Had a good day today! Her seizures have stopped. We visited for about three hours with no hiccups, then she seemed worn down so Me and my daughter left

She's still not herself but much closer. I guess the med's are doing their job. Still get the same answer from the nurse, she can give me basics and no details as to what the diagnosis or thinking is and doesn't know when the doctor will come by.

MRI is scheduled to be done shortly. maybe answers afterward.

I guess the only way to see the doctor is to just stay in the room 24 hours.

I'm feeling better though.

Doctors often make their rounds really early in the morning (and usually again later in the day, but early morning is really common and more predictable). Try to get there really early to catch them.

Fire Me Boy!
05-26-2018, 04:44 PM
Doctors often make their rounds really early in the morning (and usually again later in the day, but early morning is really common and more predictable). Try to get there really early to catch them.



True. I spent 9 days in the hospital with the toes, and I’d either see the doc or surgeon at 6 am or 8 pm.

patteeu
05-26-2018, 04:45 PM
No , at least not the doctor that needs to be seen . You can put in a request and then wait for 8 hours for him to show up . It's all wrong!

Yeah, I don't know what Fire Me Boy! is talking about because I've never known doctors to be summonable like that. Maybe he means you can find a staff doctor/hospitalist to talk to at other times, but the chances that that doctor can give you the answers you are looking for are pretty slim and I'm not even sure you'd be able to find that kind of doctor. You just need to be there when they come. Good luck!

Fire Me Boy!
05-26-2018, 04:52 PM
That’s what the nurses during my stay said. :shrug:

patteeu
05-26-2018, 04:54 PM
That’s what the nurses during my stay said. :shrug:

You're sexy. They liked you. :)

IA_Chiefs_fan
05-26-2018, 04:59 PM
Hog, I'm very relieved to hear there's at least a touch of positive news. Still pulling for you guys.

Rain Man
05-26-2018, 05:59 PM
I'm glad to hear the good news, Hog. I hope you keep the momentum rolling.

Al Czervik
05-26-2018, 06:12 PM
Good new HF....Continued prayers for you and your wife!

Otter
05-26-2018, 06:14 PM
Had a good day today! Her seizures have stopped. We visited for about three hours with no hiccups, then she seemed worn down so Me and my daughter left

She's still not herself but much closer. I guess the med's are doing their job. Still get the same answer from the nurse, she can give me basics and no details as to what the diagnosis or thinking is and doesn't know when the doctor will come by.

MRI is scheduled to be done shortly. maybe answers afterward.

I guess the only way to see the doctor is to just stay in the room 24 hours.

I'm feeling better though. Good to hear some good news Hog. Keep us posted. We're rooting for ya bud.

splatbass
05-26-2018, 06:19 PM
Great news Hog!

jdubya
05-26-2018, 07:20 PM
Great news!!!! Keep it coming

ghak99
05-26-2018, 09:17 PM
Glad to hear it appears to be moving in a positive direction!

Hospitals definitely suck. Hang in there.

mlyonsd
05-26-2018, 09:25 PM
Awesome Hog man. Baby steps forward.

ChiefGator
05-26-2018, 09:40 PM
Great news that I am sure is shining a lot more hope into your life ... Sounds like it might stable down.. crazy stuff though.

Still keeping you and yours in my thoughts and sending as much good juju your way as possible.

Kman34
05-26-2018, 10:09 PM
Good to hear she is doing better... Hope your family has a great Memorial Day...Prayers still coming..

booger
05-26-2018, 11:41 PM
Glad to hear it! Will keep praying for you all

Sassy Squatch
05-27-2018, 04:19 AM
That was my experience as well when I was with my dad for his bypass surgery. Usually the surgeon would make his rounds in the morning and I'd always see him a little after 7am.

R8RFAN
05-27-2018, 04:24 AM
Praying for our Lord Jesus Christ to lay his healing hands on your wife.. It Jesus name we pray, Amen

Hog's Gone Fishin
05-27-2018, 01:04 PM
Just got home from the hospital again. She's still not had a seizure since friday night. Speech is good and normal. Long term memory is good but short term is all messed up.

So, I actually spoke with her doctor (not the neurologist) as she came through at 11:30. In summary she expects full recovery, said short term memory loss is normal at this point. MRI negative but the EEG showed a portion of her brain misfiring. She wants to do another EEG today.

Her opinion is the underlying cause is medication withdrawal from the clonazepan she was on for the last 12 years. Before surgery she couldn't keep anything down as she was puking every 15 minutes so I expect she went 2 days without it in her system and then the surgeon had cut it way back at surgery and recovery.

I still haven't caught the neurologist as I've found he does his rounds between midnight and 3AM. The nurse says he has 7-8 hours of paperwork every day before rounds so thats why its late. First time I found a nurse that knew anything.

I want to thank ALL of you again for your thoughts and prayers and all the kind words. I've read every single post through the days and just want you guys to know I appreciate all of you. No doubt the power of CP came through again. Before long she will be able to read through this and it will make her smile.

Hog's Gone Fishin
05-27-2018, 01:09 PM
BTW, we had a good conversation for several hours this morning and i could see she was getting tired, then she was trying to tell me that her blood pressure was over 11 thousand the other day and she had also had to yell for a nurse because her heart had stopped. LOL

Pretty sure she was mistaken.

JD10367
05-27-2018, 01:20 PM
Her opinion is the underlying cause is medication withdrawal from the clonazepan she was on for the last 12 years.

That’s some serious shit. I mean, first off, it’s used to treat seizures, and side effects listed fit her symptoms.


Clonazepam
Common brands: Klonopin

Sedative

It can treat seizures, panic disorder, and anxiety.

Controlled substance

Can cause paranoid or suicidal ideation and impair memory, judgment, and coordination. Combining with other substances, particularly alcohol, can slow breathing and possibly lead to death.

Hog's Gone Fishin
05-27-2018, 01:26 PM
That’s some serious shit. I mean, first off, it’s used to treat seizures, and side effects listed fit her symptoms.


Clonazepam
Common brands: Klonopin

Sedative

It can treat seizures, panic disorder, and anxiety.

Controlled substance

Can cause paranoid or suicidal ideation and impair memory, judgment, and coordination. Combining with other substances, particularly alcohol, can slow breathing and possibly lead to death.

Yeah, her anxiety level went thru the roof years ago. Luckily she's not a drinker.

BucEyedPea
05-27-2018, 01:37 PM
Yeah, her anxiety level went thru the roof years ago. Luckily she's not a drinker.

More sex handles that. Better get out of the hog pen Hog and tend to the wife's needs.

Rain Man
05-27-2018, 01:42 PM
Once you're sure that she's feeling better, tell her that your daughter dropped out of school on the last day. There's no reason that short-term memory loss can't be fun.

'Hamas' Jenkins
05-27-2018, 01:49 PM
That’s some serious shit. I mean, first off, it’s used to treat seizures, and side effects listed fit her symptoms.


Clonazepam
Common brands: Klonopin

Sedative

It can treat seizures, panic disorder, and anxiety.

Controlled substance

Can cause paranoid or suicidal ideation and impair memory, judgment, and coordination. Combining with other substances, particularly alcohol, can slow breathing and possibly lead to death.

Klonopin is not recommended for seizure treatment by current guidelines, and long-term use of benzodiazepines for panic/anxiety is no longer recommended, either. Hog, I would seriously consider talking to your wife's physician about a long-term taper to get your wife off the benzo, and switching to another agent supported by evidence-based guidelines, taking into account her other conditions and the medications she takes.

Baby Lee
05-27-2018, 01:57 PM
Now that things are starting to look up, is it premature to inject good-natured levity and mention that every time I see this thread on the main page, I get a momentary image of HogFarmer as The Fresh Prince of Bel-Air?

vailpass
05-27-2018, 01:59 PM
Very good to hear the prognosis is for full recovery. Best to you and yours.

SupDock
05-27-2018, 02:05 PM
Klonopin is not recommended for seizure treatment by current guidelines, and long-term use of benzodiazepines for panic/anxiety is no longer recommended, either. Hog, I would seriously consider talking to your wife's physician about a long-term taper to get your wife off the benzo, and switching to another agent supported by evidence-based guidelines, taking into account her other conditions and the medications she takes.

It is used an an abortive for acute seizures, although the in my experience other benzos are typically used as first line. It is very uncommon to use it for seizure prophylaxis.

Hog's Gone Fishin
05-27-2018, 02:10 PM
More sex handles that. Better get out of the hog pen Hog and tend to the wife's needs.

Well, to be honest it did cross my mind that if she was somehow to come home in perfect health but unable to speak it could work out well as when I ask for sex she can't say no . right.

Hog's Gone Fishin
05-27-2018, 02:11 PM
Klonopin is not recommended for seizure treatment by current guidelines, and long-term use of benzodiazepines for panic/anxiety is no longer recommended, either. Hog, I would seriously consider talking to your wife's physician about a long-term taper to get your wife off the benzo, and switching to another agent supported by evidence-based guidelines, taking into account her other conditions and the medications she takes.

Thanks , you have provided several questions for me to present to the doctor as well as your past posts.

BryanBusby
05-27-2018, 02:12 PM
Klonopins aren't something I'd want to take regularly.

Hog's Gone Fishin
05-27-2018, 02:13 PM
Now that things are starting to look up, is it premature to inject good-natured levity and mention that every time I see this thread on the main page, I get a momentary image of HogFarmer as The Fresh Prince of Bel-Air?

Go with it, LOL

Hog's Gone Fishin
05-27-2018, 02:15 PM
Once you're sure that she's feeling better, tell her that your daughter dropped out of school on the last day. There's no reason that short-term memory loss can't be fun.

ROFL I like your way of thinking.

DaFace
05-27-2018, 02:22 PM
Now that things are starting to look up, is it premature to inject good-natured levity and mention that every time I see this thread on the main page, I get a momentary image of HogFarmer as The Fresh Prince of Bel-Air?Same here. ROFL

'Hamas' Jenkins
05-27-2018, 02:28 PM
It is used an an abortive for acute seizures, although the in my experience other benzos are typically used as first line. It is very uncommon to use it for seizure prophylaxis.

Ativan is much more commonly used for acute treatment of seizures due it is much faster onset of action. Diazepam is also the other benzo most commonly used.

Bewbies
05-27-2018, 02:33 PM
Great news!

Hog's Gone Fishin
05-27-2018, 02:33 PM
Ativan is much more commonly used for acute treatment of seizures due it is much faster onset of action. Diazepam is also the other benzo most commonly used.

I think they have her on the klonapin to keep her leveled out as thats what she was on before. To stop the seizures they put her on Cerebyx I believe which is really strong.

'Hamas' Jenkins
05-27-2018, 02:45 PM
Thanks , you have provided several questions for me to present to the doctor as well as your past posts.

You probably don't have the time or inclination to look through all of this info, but if you want to peruse it, here are the full NICE guidelines for epilepsy:

https://www.nice.org.uk/guidance/cg137/evidence/full-guideline-pdf-4840753069

Much more important and relevant for you is patient-friendly information. Read through this.

https://www.nice.org.uk/guidance/cg137/ifp/chapter/About-this-information

If it is epilepsy brought about by acute BZD withdrawal, it's still important to have a plan of what to do in place in case your wife has another seizure. For example, it might not be a bad idea to talk to your physician about whether or not it would be a good idea to have Diastat available at home should your wife have another breakthrough seizure upon discharge (it's a rectal gel administered through syringe with a dial to select the dose), especially given that your wife had such a severe seizure.

Also, ask your physician/neurologist what impact her current medications will have on her EEG. While EEGs are the gold standard for diagnosis they are most effective if administered within six hours of a seizure and if someone is not an anticonvulsant or antiepileptic.

Good luck. Don't take any of the things I've told you as gospel. Do your best to advocate for wife and question her medical team, albeit respectfully. Don't just smile and nod. There aren't any bad questions.

'Hamas' Jenkins
05-27-2018, 02:49 PM
I think they have her on the klonapin to keep her leveled out as thats what she was on before. To stop the seizures they put her on Cerebyx I believe which is really strong.

Yes. Hypothetically, if they decided to discontinue her clonazepam, it would be done over a series of months.

Cerebryx is the trade name for fosphenytoin, which is a different formulation of phenytoin, which is more commonly known as Dilantin. They load patients with either phenytoin or fosphenytoin to quickly get the levels up to therapeutic levels. That's standard treatment.

Hog's Gone Fishin
05-27-2018, 02:50 PM
You probably don't have the time or inclination to look through all of this info, but if you want to peruse it, here are the full NICE guidelines for epilepsy:

https://www.nice.org.uk/guidance/cg137/evidence/full-guideline-pdf-4840753069

Much more important and relevant for you is patient-friendly information. Read through this.

https://www.nice.org.uk/guidance/cg137/ifp/chapter/About-this-information

If it is epilepsy brought about by acute BZD withdrawal, it's still important to have a plan of what to do in place in case your wife has another seizure. For example, it might not be a bad idea to talk to your physician about whether or not it would be a good idea to have Diastat available at home should your wife have another breakthrough seizure upon discharge (it's a rectal gel administered through syringe with a dial to select the dose), especially given that your wife had such a severe seizure.

Also, ask your physician/neurologist what impact her current medications will have on her EEG. While EEGs are the gold standard for diagnosis they are most effective if administered within six hours of a seizure and if someone is not an anticonvulsant or antiepileptic.

Good luck. Don't take any of the things I've told you as gospel. Do your best to advocate for wife and question her medical team, albeit respectfully. Don't just smile and nod. There aren't any bad questions.

Thanks again, will look through this. They've not mentioned anything about epilipsy.

'Hamas' Jenkins
05-27-2018, 02:56 PM
Thanks again, will look through this. They've not mentioned anything about epilipsy.

It's unlikely she has epilepsy, but it's not uncommon to treat carefully given that she had multiple severe seizures from med withdrawal. It's just FYI.

Kman34
05-27-2018, 03:14 PM
Great news!! Hope she gets to go home soon... get her one of those little bells to ring if she needs something... There’s no way she would take avantage of that...:D

Nickhead
05-27-2018, 03:16 PM
CBD oils?

Hog's Gone Fishin
05-27-2018, 03:16 PM
Great news!! Hope she gets to go home soon... get her one of those little bells to ring if she needs something... There’s no way she would take avantage of that...:D

I'll just tell her to ring it when she wants sex. That should keep it quiet.

LoneWolf
05-27-2018, 04:13 PM
Been following this thread and waiting for updates to see how she is progressing. I’m glad to see she seems to be doing well and looks like she’s expected to make a full recovery. I will continue to send good thoughts your way hog with the hope that your wife continues to get better and makes it home soon.

Easy 6
05-27-2018, 06:29 PM
Just got home from the hospital again. She's still not had a seizure since friday night. Speech is good and normal. Long term memory is good but short term is all messed up.

So, I actually spoke with her doctor (not the neurologist) as she came through at 11:30. In summary she expects full recovery, said short term memory loss is normal at this point. MRI negative but the EEG showed a portion of her brain misfiring. She wants to do another EEG today.

Her opinion is the underlying cause is medication withdrawal from the clonazepan she was on for the last 12 years. Before surgery she couldn't keep anything down as she was puking every 15 minutes so I expect she went 2 days without it in her system and then the surgeon had cut it way back at surgery and recovery.

I still haven't caught the neurologist as I've found he does his rounds between midnight and 3AM. The nurse says he has 7-8 hours of paperwork every day before rounds so thats why its late. First time I found a nurse that knew anything.

I want to thank ALL of you again for your thoughts and prayers and all the kind words. I've read every single post through the days and just want you guys to know I appreciate all of you. No doubt the power of CP came through again. Before long she will be able to read through this and it will make her smile.

Thats great news, sounds like things are finally stabilizing :thumb:

ROYC75
05-27-2018, 07:29 PM
Holy Cow Hog, I just now saw this, all I can say is Thank God recover is on the mend and that God will send extra healing for all.

Boon
05-27-2018, 09:18 PM
Hope this all goes well Hog, Prayers to you and yours.

Indian Chief
05-27-2018, 09:31 PM
Ever since you first made this thread, it is the first thing I check when I log onto CP. I am so happy to hear that things are on the upswing.

Inspector
05-27-2018, 11:05 PM
I know it's a repeat, but it is sincere.

Prayers to you and your family. God's speed.

Fire Me Boy!
05-28-2018, 05:24 AM
Now that things are starting to look up, is it premature to inject good-natured levity and mention that every time I see this thread on the main page, I get a momentary image of HogFarmer as The Fresh Prince of Bel-Air?



+1

38yrsfan
05-28-2018, 06:03 AM
Good to hear :)

Tombstone RJ
05-28-2018, 07:19 AM
Had a good day today! Her seizures have stopped. We visited for about three hours with no hiccups, then she seemed worn down so Me and my daughter left

She's still not herself but much closer. I guess the med's are doing their job. Still get the same answer from the nurse, she can give me basics and no details as to what the diagnosis or thinking is and doesn't know when the doctor will come by.

MRI is scheduled to be done shortly. maybe answers afterward.

I guess the only way to see the doctor is to just stay in the room 24 hours.

I'm feeling better though.

Good to hear, best wishes for a full and speedy recovery

GloryDayz
05-28-2018, 07:30 AM
GREAT news. Woot woot.

Sent from my SAMSUNG-SM-G920A using Tapatalk

Hog's Gone Fishin
05-28-2018, 07:42 AM
Neurologist says up to two years to fully recover but it looks like I get to bring her home soon, possibly today.

IA_Chiefs_fan
05-28-2018, 07:49 AM
That's so much better than it sounded like in the beginning. I'm truly happy for you, Sir.

Hydrae
05-28-2018, 09:24 AM
Neurologist says up to two years to fully recover but it looks like I get to bring her home soon, possibly today.

That would be awesome!

Did he provide any ideas on what caused this in the first place? Is it just a reaction to the withdrawals, the anesthesia, some combination?

MahiMike
05-28-2018, 09:26 AM
So sorry to hear this. Stay strong.

Hog's Gone Fishin
05-28-2018, 09:43 AM
That would be awesome!

Did he provide any ideas on what caused this in the first place? Is it just a reaction to the withdrawals, the anesthesia, some combination?

Their opinion is medication withdrawal.

Buzz
05-28-2018, 04:07 PM
Glad to hear things are looking up, thats some scary stuff.



Sent from my LGLS775 using Tapatalk

HonestChieffan
05-28-2018, 04:39 PM
Neurologist says up to two years to fully recover but it looks like I get to bring her home soon, possibly today.

Been following this from the beginning....

I relate. My wife and I hooked up in 1973....do the math.

4 years ago her heart blew up with a valve issue and buddy I know how you felt.

Do all you can, trust the docs, say prayers for the amazing nurses.

Think about you....are you doing the right stuff to be healthy?

And I will hold both of you in prayer that all goes well.

Reach out for support when you need it....you have friends you dont even know...

God bless my friend...

kc rush
05-28-2018, 04:42 PM
Neurologist says up to two years to fully recover but it looks like I get to bring her home soon, possibly today.

Glad to hear things are looking up. I know that it is different, but my sister had an aneurysm a couple of years ago and dealt with seizures for about a year. Doc said that it was part of the brains healing process.

mlyonsd
05-28-2018, 04:58 PM
Awesome news Hog.

lewdog
05-28-2018, 05:24 PM
That's definitely good news!

Glad things are going better.

Al Bundy
05-28-2018, 05:25 PM
Neurologist says up to two years to fully recover but it looks like I get to bring her home soon, possibly today.

This is great news.

ChiefGator
05-28-2018, 07:34 PM
You get her home yet? I'm sure she will be much happier back in her old surroundings and out of that hospital.

Shaid
05-28-2018, 09:07 PM
Really good news. Glad to hear things are looking much better.

Hog's Gone Fishin
05-29-2018, 06:56 AM
You get her home yet? I'm sure she will be much happier back in her old surroundings and out of that hospital.


Yes, brought her home yesterday afternoon. she was awful cranky until I got her tucked into bed. She's taking 5 different medications now and is supposed to have the staples removed from her surgery today. Her short term memory is awful and she won't shut up.

Iowanian
05-29-2018, 07:52 AM
Glad she's home.

On the bright side, this might be the perfect time to start the subliminal messages about how she thinks you're awesome and likes to do all of the things that you like.

Predarat
05-29-2018, 08:05 AM
Wow glad she is home and doing better, hope she keeps getting better!

JD10367
05-29-2018, 08:27 AM
Her short term memory is awful . . .

Now’s the time to ask for anal. “We do it all the time...” And then if she doesn’t remember afterwards... lather, rinse, repeat.

Mr. Kotter
05-29-2018, 08:39 AM
Glad to hear things seem to be turning around...hang in there.

Iowanian
05-29-2018, 08:43 AM
Now’s the time to ask for anal. “We do it all the time...” And then if she doesn’t remember afterwards... lather, rinse, repeat.

Ladies and Gentlemen.....welcome Bill Cosby to the planet.

Bwana
05-29-2018, 08:48 AM
Wow, I'm glad things took a turn for the better in this ordeal. It sounds like I may take some time, but she will recover, great news!

Simply Red
05-29-2018, 08:53 AM
great news to have her back home.

Chief Roundup
05-29-2018, 09:11 AM
Great news!!

Hog's Gone Fishin
05-29-2018, 09:57 AM
Now’s the time to ask for anal. “We do it all the time...” And then if she doesn’t remember afterwards... lather, rinse, repeat.

The power of CP comes through again.:clap:

ModSocks
05-29-2018, 10:01 AM
Woot!. Glad it's all turning out 'aight.

GloryDayz
05-29-2018, 11:28 AM
Yes, brought her home yesterday afternoon. she was awful cranky until I got her tucked into bed. She's taking 5 different medications now and is supposed to have the staples removed from her surgery today. Her short term memory is awful and she won't shut up.

It's OK, you're a husband, you can deal with cranky...

Buehler445
05-29-2018, 12:26 PM
Glad she’s home and trending the right direction.

kccrow
05-29-2018, 11:28 PM
Glad to hear the wife is coming along Hog, and your sanity along with it. Best wishes going forward and continued prayers.

srvy
05-30-2018, 06:10 AM
Good news! The best medicine on the planet is being home with those you love. Hoping for a complete and total recovery.

ptlyon
06-19-2018, 12:26 PM
How's things coming hog? I see you have been posting.

Any updates?

SuperBowl4
06-19-2018, 01:28 PM
It's OK, you're a husband, you can deal with cranky...I'm sure AMA has a pill for cranky

Hog's Gone Fishin
06-19-2018, 03:39 PM
How's things coming hog? I see you have been posting.

Any updates?

Well, no seizures since I got her home. She seems to get a little closer to her normal self daily. Bad news is she started smoking again. She had gone within 4 days shy of a month without a cig and all of the sudden she went bat shit crazy and demanded I go get her a cig. It was either get the cig or fear for my life. So anyway, she can't drive per doctors orders so I'm pinned down to having to stay close.

Hopefully they will be able to wean her off the seizure meds after we see the neurologist July 6th.

Thanks for asking and to everybody for the good thoughts and prayers.

Hog

ptlyon
06-19-2018, 04:08 PM
Good to hear! Take care!