Life Love and prayers update thread

Tacoman · 02-02-2015, 02:53 PM

I wanted to fill everyone in on how Pfeifer is doing and also just say thanks for all of the support. At the time I posted the original thread I was just so beside myself with grief and really didn't feel like I knew where to turn. I have been mostly a Lurker, so it definitely felt like I was going out on a limb a little bit. You all took me in with open arms and were just so helpful both for helping me cope, and also taking the time to lend your thoughts and prayers for my nephew. The story is really just amazing and we feel so fortunate, but also I can't help but feel for all of the kids that are still dealing with this stuff that were not so lucky. From what I have been told, there are some pretty severe cases where children will be on ventilators for life due to the illness. Now that the results are in from the CDC I am absolutely astounded and amazed, this is the info from the CDC:

------------------------------------------------------------------------------------
From the Center for Disease Control: UPDATE on Acute Flaccid Myelitis

http://www.cdc.gov/ncird/investigati.../hcp.html#case

From August 2, 2014 to January 28, 2015, CDC has verified reports of 111 children in 34 states who developed acute flaccid myelitis that meets CDC’s case definition. CDC continues to collaborate with partners nationally to investigate reported cases, risk factors, and possible causes of this condition.

· The median age of the children was about 7 years.
· Almost all of them were hospitalized; some were put on breathing machines.
· Most patients had fever and/or respiratory illness before onset of neurologic symptoms.
· About two thirds of the children who have been observed (median 19 days) after their illness reported some improvement in symptoms, while about one third showed no improvement. Only one of the children has fully recovered.
· We continue to test specimens from these patients for a wide range of pathogens that can result in this syndrome.

--------------------------------------------------------------------------------------

We are not sure whether or not Pfeifer is "the one" or if he is now the second case that has fully recovered. He has been cleared of all physical therapy and is considered fully recovered, but we are not sure whether or not the therapists have updated the CDC or not.

Once again, thank you all so much.

**Mr. Flopnuts** · 02-02-2015, 03:20 PM

Amazing. Thank you for sharing. When I pray for you and others I invest myself into it and love hearing this update. God bless.

**Buehler445** · 02-02-2015, 03:23 PM

That's great man. Absolutely great.

I'm so happy for you and yours.

Thanks for sharing.

**Ming the Merciless** · 02-02-2015, 03:23 PM

holy shit dude!!!!!

what a miracle

big ass hug of relief..

I am a father and I have one on the way

I hate it when my kid even has the sniffles..I am a huge pussy worry wart......

Cant even imagine worrying about something like that...

Excellent news!!!

Red Beans · 02-02-2015, 07:31 PM

Quote:

Originally Posted by Pawnmower

holy shit dude!!!!!

what a miracle

big ass hug of relief..

I am a father and I have one on the way

I hate it when my kid even has the sniffles..I am a huge pussy worry wart......

Cant even imagine worrying about something like that...

Excellent news!!!

All of this x 10!

**wazu** · 02-02-2015, 03:45 PM

Sounds like a terrible disease. In your original post I thought they had told you it was a complication from the flu. Did that end up not being correct?

Lonewolf Ed · 02-02-2015, 03:45 PM

That is fabulous news and put a big smile on my face!

Tacoman · 02-02-2015, 10:51 PM

Quote:

Originally Posted by Lonewolf Ed

That is fabulous news and put a big smile on my face!

Your turn! I was so happy to hear that the last round with the doc went as well as it did. When do you leave for Europe!?!?

Lonewolf Ed · 02-02-2015, 11:13 PM

Quote:

Originally Posted by Tacoman

Your turn! I was so happy to hear that the last round with the doc went as well as it did. When do you leave for Europe!?!?

I leave on May 4th, at 5:49 pm from Kansas City International going to Chicago O'Hare, then on to Copenhagen, and finally to Aalborg, arriving at 3:35 pm their time. Just 3 more months to wait!

**BigRedChief** · 02-02-2015, 03:45 PM

I was a Respiratory Therapist for 10 years. Did a residency stint down at Mercy. Any questions or concerns.....you can pm me.

Kman34 · 02-02-2015, 03:48 PM

This is great Monday news... Made my day..

Tacoman · 02-02-2015, 10:48 PM

Quote:

Originally Posted by BigRedChief

I was a Respiratory Therapist for 10 years. Did a residency stint down at Mercy. Any questions or concerns.....you can pm me.

Thank you!

Apparently there is a very high % of Asthma in the patients. My nephew has asthma as well.

**srvy** · 02-02-2015, 04:07 PM

Mondays usually suck! Not this one excellent news. Prayers work.

BoneKrusher · 02-02-2015, 04:10 PM

Awesome News.

Hydrae · 02-02-2015, 08:00 PM

AWESOME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

02-02-2015, 02:53 PM	Topic Starter
Tacoman Starter Join Date: Nov 2013 Location: Utah Casino cash: $10011744	Love and prayers update thread I wanted to fill everyone in on how Pfeifer is doing and also just say thanks for all of the support. At the time I posted the original thread I was just so beside myself with grief and really didn't feel like I knew where to turn. I have been mostly a Lurker, so it definitely felt like I was going out on a limb a little bit. You all took me in with open arms and were just so helpful both for helping me cope, and also taking the time to lend your thoughts and prayers for my nephew. The story is really just amazing and we feel so fortunate, but also I can't help but feel for all of the kids that are still dealing with this stuff that were not so lucky. From what I have been told, there are some pretty severe cases where children will be on ventilators for life due to the illness. Now that the results are in from the CDC I am absolutely astounded and amazed, this is the info from the CDC: ------------------------------------------------------------------------------------ From the Center for Disease Control: UPDATE on Acute Flaccid Myelitis http://www.cdc.gov/ncird/investigati.../hcp.html#case From August 2, 2014 to January 28, 2015, CDC has verified reports of 111 children in 34 states who developed acute flaccid myelitis that meets CDC’s case definition. CDC continues to collaborate with partners nationally to investigate reported cases, risk factors, and possible causes of this condition. · The median age of the children was about 7 years. · Almost all of them were hospitalized; some were put on breathing machines. · Most patients had fever and/or respiratory illness before onset of neurologic symptoms. · About two thirds of the children who have been observed (median 19 days) after their illness reported some improvement in symptoms, while about one third showed no improvement. Only one of the children has fully recovered. · We continue to test specimens from these patients for a wide range of pathogens that can result in this syndrome. -------------------------------------------------------------------------------------- We are not sure whether or not Pfeifer is "the one" or if he is now the second case that has fully recovered. He has been cleared of all physical therapy and is considered fully recovered, but we are not sure whether or not the therapists have updated the CDC or not. Once again, thank you all so much.
Posts: 418

02-02-2015, 03:23 PM	#3
Buehler445 Supporter Join Date: Apr 2007 Location: Scott City KS Casino cash: $2044734	That's great man. Absolutely great. I'm so happy for you and yours. Thanks for sharing.
Posts: 56,916

02-02-2015, 03:23 PM	#4
Ming the Merciless Emporer of Mongo Join Date: Apr 2010 Location: Milky Way Casino cash: $2707556	holy shit dude!!!!! what a miracle big ass hug of relief.. I am a father and I have one on the way I hate it when my kid even has the sniffles..I am a huge pussy worry wart...... Cant even imagine worrying about something like that... Excellent news!!! __________________ ---- 2018 Adopt-A-Chief : Chris Conley 2017 Adopt-A-Chief : FRANK ZOMBO Click here-->*The Holy Chiefsplanet Lexicon **
Posts: 44,496

02-02-2015, 03:45 PM	#6
wazu ... Join Date: May 2002 Location: Kansas City, MO Casino cash: $1932295 VARSITY	Sounds like a terrible disease. In your original post I thought they had told you it was a complication from the flu. Did that end up not being correct?
Posts: 27,914

02-02-2015, 03:45 PM	#7
Lonewolf Ed Veteran Join Date: Jun 2005 Location: Olathe, KS Casino cash: $10606233	That is fabulous news and put a big smile on my face!
Posts: 3,774

02-02-2015, 03:45 PM	#10
BigRedChief Has a particular set of skills Join Date: Dec 2003 Location: On the water Casino cash: $2869627 VARSITY	I was a Respiratory Therapist for 10 years. Did a residency stint down at Mercy. Any questions or concerns.....you can pm me. __________________ Time is worth more than money.
Posts: 79,209

02-02-2015, 03:48 PM	#11
Kman34 My Mamma Says Join Date: Jan 2014 Location: Glass Cage Of Emotion Casino cash: $1701786 VARSITY	This is great Monday news... Made my day..
Posts: 13,949

02-02-2015, 04:07 PM	#13
srvy Fight, build, win! Join Date: Sep 2004 Location: KC Casino cash: $1401250	Mondays usually suck! Not this one excellent news. Prayers work.
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02-02-2015, 04:10 PM	#14
BoneKrusher That's Right Join Date: Sep 2011 Location: Bluefield, Virginia Casino cash: $9976645	Awesome News. __________________ "MaHomes/MaAuto"
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02-02-2015, 08:00 PM	#15
Hydrae Sandbox: Leander Lasercats Join Date: Jul 2001 Location: Austin, Tx Casino cash: $2057000	AWESOME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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